WeeSue's Journey with Uterine Leiomyosarcoma

Survivor: Endometrial (Uterine) Cancer > Uterine Leiomyosarcoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 3 years ago, Female, Age: 57, Stage I

  1. 1
    • WeeSue
    • Experience with Uterine Leiomyosarcoma
    over 2 years ago
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    Oh No

    Received phone call at work with diagnosis and referral to a gyn onc for surgery.

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  2. 2
    • WeeSue
    • Experience with Uterine Leiomyosarcoma
    over 2 years ago
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    Surgery

    Procedure or Surgery

    Complete hysterectomy via robotic surgery.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • WeeSue
    • Experience with Uterine Leiomyosarcoma
    over 2 years ago
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    Whether or not to do any adjacent treatment

    Decision Point

    Went to sarcoma specialist after surgery was complete. Was told there was no evidence that chemo would help prevent recurrence or would not and sarcoma specialist did not really recommend. No radiation was prudent at this time. Follow up scans would be done every three months for 2 years

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  4. 4
    • WeeSue
    • Experience with Uterine Leiomyosarcoma
    over 2 years ago
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    Clear scans for 9 months

    Celebration

    I go to UC Hospital in Denver and have had three scans and am still currently NED. Doctor pushed next scan to 4 months. He wanted to go to 6 and I told him NO!

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  5. 5
    • WeeSue
    • Experience with Uterine Leiomyosarcoma
    over 2 years ago
    WeeSue's Avatar

    Psychosocial

    Other Care

    Started seeing a therapist to help deal with grief and loss associated with living with cancer. Has helped immensely and I am on an as needed basis now. It was recommended I ask my primary for some medical support but I have not been brave enough to do that.

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