insanejane's Journey with Brain and Spinal Cord Tumors in Adults

Caregiver: Brain and Spinal Cord Tumors in Adults

Patient Info: Receiving hospice or palliative care, Diagnosed: almost 6 years ago, Male, Age: 76

  1. 1
    • insanejane
    • Experience with Brain and Spinal Co...
    over 4 years ago
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    Oh No

    the doctor says the word "cancer" .... XXX...

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  2. 2
    • insanejane
    • Experience with Brain and Spinal Co...
    over 4 years ago
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    Radiation

    Dad had radiation to the brain tumor and walked out inh less than an hour! its amazing what they have learned to do . it used to be just a death sentance but now they have treatments we wouldnt have dreamed of!

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • insanejane
    • Experience with Brain and Spinal Co...
    over 4 years ago
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    Procedure or Surgery

    2 chemo embolizations to the liver tumor. went much better than even the doctor expected, and we've killed off 2 cm of a 10 cm tumor:)

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    • insanejane
    • Experience with Brain and Spinal Co...
    over 4 years ago
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    Drug or Chemo Therapy

    Dad had 6 months of various chemo drugs, it took a full day on iv, sitting in the hospital . He experienced awful side effects, the worst of them is that he can no longer walk safely. neuropathy in both legs. if you are on chamo and you start to get numbness, see your doctor immediately, you might need to change drugs!

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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