Jennew's Journey:

Survivor: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 57, Stage IIA, HER2 Positive: No, ER Positive: No, PR Positive: No

  1. 1
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    Diagnosed

    Oh No

    I was diagnosed with Fibrocystic Breast Disease at 24 so I have had mammograms every since then. Been a healthy person rarely get sick. So I was shocked when I found a lump in my right breast. Made an appointment as soon as I could. Then the Oh no came. I was diagnosed with Breast cancer.

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  2. 2
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    Lumpectomy

    Procedure or Surgery

    Also removed a lymph node.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    A Balloon catheter for radiation was placed.

    Procedure or Surgery

    This was a painful process. The Food and Drug Administration (FDA) approved a new technology for brachytherapy called balloon catheter radiation in 2002. For breast radiation, some methods use a balloon, and others use a device that expands like a balloon, once it is placed inside your breast. These methods of partial-breast radiation are gaining acceptance among oncologists, and may be an option for you. Treatment is given for 5 to 7 days, after which the catheter is removed. Because this method of radiation takes less time than external beam radiation, it is also called accelerated partial breast irradiation. The worst part was the removal. No anesthesia or pain relief at all. They just twist and yank it out. That was worse than the lumpectomy.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    Internal radiation (Brachytherapy)

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I had my first Chemo treatment May 15th 2012 I have never been so sick in all my life. The headaches were the worst of it. Blurry vision, feeling like I was run over with a MACK truck. Everything hurt! And Just as I started to feel better it was time to have another chemo treatment.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  7. 7
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    The shot after chemo called Neulasta made me have horrible headaches.

    Side Effects

    Just a few hours after the shot Neulasta I started experiencing horrible headaches. Never in my life have I had headaches like that. The pain was a throbbing pain, I could not see straight, think straight, or function. Later that night I experienced a Wavy Zig zag line in my right eye, then a bright yellow light stayed on. It lasted about 30 min, I thought i may be having a stroke or something. Nothing seamed to help. Went to the ER they gave me fluids and sent me home. Felt like I was run over by a truck. Finally on the 3rd Chemo treatment they changed something to my pre treatment adding benadryll. My headaches are much better. Now I have thrush and a stomach bug. Feeling very crappy at the moment. They gave me meds and took bloodwork. Waiting on results. Will I live through this?

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  8. 8
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    I talked to my Oncology Dr today and they are changing my chemo therapy to a different drug due to the neuropathy in my hands and feet. They don't want it to become a permanent thing. It will reduce the number of how many I have left. I would have had 6 weekly treatments but now I will have 3 three weeks apart. Hope this course isn't as mean as the first 4. I will have to take a lot of steroids because of the allergic reactions this drug causes. I hope this goes well. So ready to be done and move forward with my life. Feels like I have been on hold too long.

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  9. 9
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    Skin changes

    Side Effects

    My skin is very dry, my hands look terrible, arms, legs and feet are dry and peeling. All due to the side effects of Taxol. My feet hurt and look like they have been burned. I put lotion daily. Doesn't help at all. I may have to live with this a while. Yikes

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  10. 10
    • Jennew
    • Experience with Triple-Negative Breast ...
    over 4 years ago
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    Swelling (edema)

    Side Effects

    My feet, hands, arms and legs started swelling. Feet are so painful, skin is splitting and peeling. My fingernails are lifting and turning black. Feels like they have been hit with a hammer. My left arm is so swollen I can't bend it. My Oncologist ordered a scan to see if I had a clot somewhere. Turns out it was in my Port. So they took it out right away. Swelling has gotten better. But something is still wrong.

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