Cavmom's Journey with Liposarcoma

Patient: Sarcoma - Adult Soft Tissue Cancer > Liposarcoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 60, Stage Recurrent

  1. 1
    • Cavmom
    • Experience with Liposarcoma
    about 2 years ago
  2. 2
    • Cavmom
    • Experience with Liposarcoma
    about 2 years ago
    Cavmom's Avatar

    Surgery

    Procedure or Surgery

    Abdominal liposarcoma. Huge mass removed along with my left kidney. They got it all, clean margins. But I was told 50 50 chance of recurrance.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • Cavmom
    • Experience with Liposarcoma
    about 2 years ago
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    Cancer has spread/Metastasized

    Oh No

    Just after my one year clear another scan showed not only had it recurred but it also spread to my lungs.

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  4. 4
    • Cavmom
    • Experience with Liposarcoma
    about 2 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Tried Ibrance first

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • Cavmom
    • Experience with Liposarcoma
    about 2 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Ibrance did nothing. Tried Doxorubicin with Lartruvo. First dose burned my arm vein. Had port installed before second dose.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • Cavmom
    • Experience with Liposarcoma
    about 2 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Doxo didn't work. Switched to Gemzar and taxotere. Had thinning of hair before but lost so much this time I buzzed my head and wore caps and scarves.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    • Cavmom
    • Experience with Liposarcoma
    about 2 years ago
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    Surgery

    Procedure or Surgery

    These treatments didn't work and all tumors grew. Decision made to remove mass from abdomen first. This was done between chemo types. The scan after this surgery showed he missed one tumor in the abdomen. I then did the Gemzar treatments but that didn't work either. They decided the lung surgery should be done first. They did one lung at a time about 5 weeks apart then they removed from the abdomen 4 months later.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  8. 8
    • Cavmom
    • Experience with Liposarcoma
    about 2 years ago
    Cavmom's Avatar

    Side Effects

    Through all of the side effects of the chemo, the disappointment every time they didn't work, the surgeries, and knowing it will recurr even after all this I ended up on Welbutrin.

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