TerriL's Journey with Triple-Negative Breast Cancer, Ductal

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 1 year ago, Female, Age: 63, Stage IIB, HER2 Positive: No, ER Positive: No, PR Positive: No

  1. 1
    • TerriL
    • Experience with Triple-Negative Breast ...
    about 1 year ago
    TerriL's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am starting chemo next week, total of 20 weeks. Then facing surgery and then radiation. This is going to be a long journey. Had my first treatment 5/22. The treatment, about 4 hours, was a piece of cake. However, I have had no sleep, have a killer headache even with using Tylenol. I have to have two more MRI biopsies today, and am so not looking forward to it.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  2. 2
    • TerriL
    • Experience with Triple-Negative Breast ...
    about 1 year ago
    TerriL's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    More biopsies yesterday and next Wednesday. Feel like a pincushion. Having port installed today, and start chemo next week. Four days after having port installed, still a lot of soreness and awkwardness. It made my first chemo tx much easier though, so I'm glad I did it!

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • TerriL
    • Experience with Triple-Negative Breast ...
    12 months ago
    TerriL's Avatar

    Low blood counts, nausea, weakness and fatigue, taste changes, weight loss, chemo brain, neuropathy

    Side Effects

    I'm having a really rough time with the side effects. I've had 3 of the 4 AC treatments. After that I have 12 Taxotere treatments. I am very weak and shaky the whole time. I have thrown up in spite of being on Zofran and Atavan. I have stomach lining irritation I'm taking a med for. I get severe diarrhea and then I get mouth sores. This is getting really tough! Managed to get through the chemo. Dealt with a lot of side effects and low blood counts. Had to have a blood transfusion at one point.

    0 Comments
  4. 4
    • TerriL
    • Experience with Triple-Negative Breast ...
    9 months ago
    TerriL's Avatar

    I still have three chemo treatments to go. I have had to delay treatment several times due to very low blood counts. I just had a blood transfusion this last week. Am hoping that will allow me to finish my chemo so I can move on to surgery and radiatio

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • TerriL
    • Experience with Triple-Negative Breast ...
    7 months ago
    TerriL's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have finished chemo (six months, which included a blood transfusion)! I have surgery scheduled for Nov 16. I believe I am through the worst of this journey.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. 6
    • TerriL
    • Experience with Triple-Negative Breast ...
    5 months ago
    TerriL's Avatar

    Lumpectomy

    Procedure or Surgery

    I had two lumpectomies and removal of two lymph nodes. Recovery was very quick.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  7. 7
    • TerriL
    • Experience with Triple-Negative Breast ...
    7 months ago
    TerriL's Avatar

    External radiation

    Radiation

    I go today (12/5/18) for a CT scan to prepare for radiation. I will start next week. I will also start an oral chemo drug since after IV chemo and surgery I still had microscopic cancer cells in the removed tissue and the sentinel lymph nodes. Finished radiation 1/29/18. Had to deal with some severe burns. Apparently being on the Xeloda at the same time intensifies the burning. I found that coating with Vaseline when I came home after treatment helped more than any of the creams I tried.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  8. 8
    • TerriL
    • Experience with Triple-Negative Breast ...
    5 months ago
    TerriL's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am now taking Xeloda, a chemo drug, to hopefully kill any remaining microscopic cancer cells. They were found in the tumor and lymph nodes that were removed.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  9. 9
    • TerriL
    • Experience with Triple-Negative Breast ...
    4 months ago
    TerriL's Avatar

    Other

    Side Effects

    I am just finishing my fourth round of Xeloda. Starting to have more severe side effects: stomach pain, not wanting to eat, fatigue . Will have to see what my doctor wants to do when I go in for blood work before the next round. So ready to be done with all this.

    0 Comments
  10. 10
    • TerriL
    • Experience with Triple-Negative Breast ...
    3 months ago
    TerriL's Avatar

    Other

    Celebration

    I had my yearly mammogram this week. There are no signs of cancer! I have one more round of Xeloda and then I am through except for monitoring.

    2 Comments
  11. 11
    • TerriL
    • Experience with Triple-Negative Breast ...
    13 days ago
    TerriL's Avatar

    Finished treatment

    Celebration

    I finished all treatmenbt June 3! It has been a long 13+ months. Now I will have 3 month checkups for at least the next two years.

    5 Comments