rogers123's Journey with Brain and Spinal Cord Tumors in Adults

Patient: Brain and Spinal Cord Tumors in Adults

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 45

  1. 1
    • rogers123
    • Experience with Brain and Spinal Cor...
    about 5 years ago
    rogers123's Avatar


    Procedure or Surgery

    Initial Diagnosis: 4/30/2011, 1st Surgery OKC (only 30-40% removal):5/2/2011; Discharge Hospital: 5/4/2011;1st Opinion Oncologist: 5/11/2011 could not discuss treatment until Mayo Clinic Confirmed Diagnosis. Mayo Clinic Positive Result: 5/16/2011; Primary Brain Tumor; Neurosurgeon Staple Removal: 5/20/11; 2nd Opinion Oncologist: 5/26/2011; Chemo Class: 5/27/2011; Radiologist Appt: 6/2/2011; Oncologist Appt: 6/8/2011; Emergency Room/Migraine-regrowth of Tumor: 6/10/2011; Discharge Hosptial: 6/14/2011; OKC 2nd Surgery/regrowth removal(only 30-40%): 6/20/2011; Discharge Hospital: 6/23/2011; Emergency Room/Swelling Joints/Migraine: 6/25/2011; Emergency Room/Admit Hosptial: 6/29/2011; Discharge Hospital: 6/30/2011; New Grandbaby born: 7/2/2011; Radiologist Appt: 7/5/2011 regrowth refer to MDAnderson: 7/6/2011; MD Anderson Appt: 7/13/2011; 3rd Surgery @ MD Anderson (99%removal Dr Levine, Neurosurgeon): 7/21/2011; Discharge MD Anderson: 7/25/2011; Drive home: 7/26/2011; MD Anderson Neurosurgeon Follow Up: 8/3/2011; MD Anderson Neuro Oncologist Appt: 8/4/2011; OKC Oncologist Appt: 8/15/2011; MD Anderson Stitches Removal: 8/17/2011 (not ready follow up next week); OKC MRI 8/23/2011; MD Anderson Neurogsurgeon follow up for stitches not ready: 8/24/2011; OKC Radiologist Appt: 8/27/2011; OKC Oncologist Appt: 8/29/2011; Start Raditaion: 8/30/2011; Start Temodar Oral Chemo: 8/30/2011; Golf Tournament Fund Raiser: 9/30/2011; Party In The Park Family Fun Day Fund Raiser: 10/1/2011; Poker Run Fund Raiser: 10/8/2011. Last Radiation Treatment: 10/10/2011. Will wait 2 weeks, restart Oral Temodar at larger dose for 5 days a week, instead of 7 & follow up MRI in 6 weeks (end of November 2011). Still fighting each day to stay strong, POSITIVE, eating well, taking Prenatal & Iron Vitamins to keep my labwork in order (my points are up-in a postive way). God, Family (3-sisters, 2-children/boys, 1-daughter, 1-grandson) & Friends/co-workers support have helped me get through this. :0)

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree