MiriamMarino's Journey with Multiple Myeloma

Patient: Multiple Myeloma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 3 years ago, Female, Age: 61

  1. 1
    about 1 month ago
    MiriamMarino's Avatar

    Just Diagnosed

    Oh No

    Hello, I was diagnosed with Multiple Myeloma in June 2016.

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  2. 2
    about 1 month ago
    MiriamMarino's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The induction period lasted 4 months using two chemotherapy meds and a steroid. I worked throughout the induction period out of necessity but do not recommend it to anyone. Focus on taking good care of yourself and the hope of remission.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    about 1 month ago
    MiriamMarino's Avatar

    stem cell transplant

    Procedure or Surgery

    The stem cell transplant was effective for only 9 months. The cancer returned worse than before and treatment for relapse is ongoing.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    about 1 month ago
    MiriamMarino's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am undergoing treatment for relapse of Myeloma. A port was inserted after 6 months of treatment for easier access but in actuality, the port has caused me continual discomfort, and pain on treatment days. It's functional, so it is staying in my chest. I just need to endure it for as long as possible. Treatment was supposed to finish in June of 2019 but I was informed by the Oncologist that treatment will not end. I'm just thankful treatment has achieved remission. However, in order to stay in remission as long as possible, I must stay in treatment.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    about 1 month ago
    MiriamMarino's Avatar

    What will I do next?

    Decision Point

    When I began treatment for relapse Myeloma in January 2018, I was told it would run through June 2019, a total of 18 months. Now, I am advised treatment must continue beyond that time with the goal to stay in remission. While I am so very thankful the treatment has worked to attain remission, I am wondering how long I wish to endure the side effects of chemo in order to stay in remission. The treatment has been modified to once a week infusion every other week, as opposed to twice a week for three weeks in a row and one week of rest. The modification of treatment is par for the course. It was expected. But ongoing treatment beyond 18 months was not expected. So, it is decision time. I have to decide if it is ok for the quality of my life to be impaired moderately by treatment, or stop treatment after June as originally planned. Praying about this as I breathe. Thank you for letting me share my thoughts. Your feedback is appreciated. Love.

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