Lmorales' Journey with Invasive (Infiltrating) Ductal Carcin...

Survivor: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: 8 months ago, Female, Age: 60, Stage IIB, HER2 Positive: No, ER Positive: Yes, PR Positive: No

  1. 1
    • Lmorales
    • Experience with Invasive (Infiltratin...
    10 days ago
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    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    • Lmorales
    • Experience with Invasive (Infiltratin...
    10 days ago
    Lmorales' Avatar

    Just Diagnosed

    Oh No

    Diagnosed at my annual mammogram. No family history. Was shocked. Initial diagnosis was Stage 1 at about 1 cm. My surgeon told me after my lumpectomy I would not need chemo, just radiation. After surgery, it was changed to Stage 2 because the tumor was larger (it was 2.5 cm) and they found 2/7 lymph nodes were positive for cancer. Because I had lymph node involvement I needed chemo. Also, had oncogene typing and it came back at 19. That’s on a scale of 1-100. 1-17 means your cancer is slow growing. 18 - 30 (can’t remember the exact #), the cancer is intermediate grade and above that, your cancer is more aggressive. A new study came out in June 2018 which showed if you were in the 1-17 oncotype group there was no difference in survival if you had chemo or not. So essentially, you may not have to have chemo if you are in that group. Above that - in the intermediate group - it’s a gray area. In the faster growing, aggressive group, definite chemo. Mine was in the lower range of intermediate at 19. My oncologist felt I could skip the chemo - or rather I could go either way - he was okay with either chemo or no chemo. However, I had lymph node involvement which were not the patient’s in the study (they did not have lymph node involvement). Standard of care for my Stage 2 breast cancer with lymph node involvement is surgery, chemo, radiation. I lost faith in my oncologist and found another one. She absolutely said I should have chemo (and my breast surgeon agreed). So I did. So my advice, is to be your own advocate. Know what the standard of care is - check out the (NCCN) national comprehensive cancer network guidelines and read the patient’s version for your cancer. These are the guidelines physicians use to determine what treatment a patient should have. For invasive BC here is the link: https://www.nccn.org/patients/guidelines/breast-invasive/index.html. Be knowledgeable and your own advocate. If you aren’t comfortable with your physician, change to a new one or get a second opinion. You are the consumer. I realized after going through this that cancer is big business and you can demand the best care. Be blessed!!

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  3. 3
    • Lmorales
    • Experience with Invasive (Infiltratin...
    10 days ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Lmorales
    • Experience with Invasive (Infiltratin...
    10 days ago
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    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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