Resting's Journey with Chronic Lymphocytic Leukemia (CLL)

Patient: Leukemia > Chronic Lymphocytic Leukemia (CLL)

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 1 year ago, Female, Age: 74

  1. 1
    • Resting
    • Experience with Chronic Lymphocytic Le...
    over 1 year ago
    Resting's Avatar

    Just Diagnosed

    Oh No

    I had to change my primary care physician and on my first visit with him he noted that my WBC count had been elevated for a year so he ordered more blood test that showed abnormal lymphocytes. So he referred me to hematology/oncology. More testing is being done but I appear to be at Stage 0. I am 72 years old and this is my first experience with serious illness. I am followed every 3 months with blood tests. My WBC count is a little higher with each test.

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  2. 2
    • Resting
    • Experience with Chronic Lymphocytic Le...
    11 months ago
    Resting's Avatar

    Monitoring

    Other Care

    I have blood tests done every 3 months. My WBC count goes up a little each time but I am still at stage zero. I have not told my children or other family or friends about my diagnosis and am thinking that I will not tell them until I progress to a stage that requires treatment.

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  3. 3
    • Resting
    • Experience with Chronic Lymphocytic Le...
    9 months ago
    Resting's Avatar

    Other

    Procedure or Surgery

    I have blood tests and see my oncologist every 3 months to monitor my CLL. Last month the automated blood count found blast cells in my blood. A pathologist examined my blood sample and could not rule out blast cells. So at my regular 3 month visit the oncologist did a bone marrow biopsy and I had a CT scan to see if I had developed acute myeloid leukemia. It was a scary few days waiting for the results but thankfully both were negative and I continue with slowly progressing CLL.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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