Neri's Journey with Multiple Myeloma

Caregiver: Multiple Myeloma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 10 years ago, Male, Age: 48

  1. 1
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Surgery

    Procedure or Surgery

    Prior to diagnosis, had a spinal fusion of 4 levels which has greatly impacted on basic acts of daily living

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    External radiation

    Radiation

    Had 2 cycles of radiation thus far - 2008: 10 sessions to the spine & 2018: 5 sessions each to both the left & right humerus

    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Chemotherapy

    Drug or Chemo Therapy

    Multiple lines of chemo - VAD, velcade, dex, thalidomide, melphalan. Currently on a triple drug combo velcade dex thalidomide. Side effects are hectic. Also had a stem cell transplant in 2012.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Allergic reaction

    Side Effects

    1st radiation session - had allergic reaction : extreme pain, fever, chills, increased heart rate, couldn't breathe & temporary paralysis.

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  5. 5
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Anemia (low red blood cell counts)

    Side Effects

    Ongoing issue since diagnosis

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  6. 6
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Bone fracture or break

    Side Effects

    Had a 5.5 cm bone lesion in left arm which had to stabilized with rods & screws - very uncomfortable, painful & limited movements

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  7. 7
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Bone fracture or break

    Side Effects

    Had a tumour in T12, had to have spinal fusion of 4 levels, one rod with 8 screws still in spine - limited activities as a result.

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  8. 8
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Chemo brain

    Side Effects

    Other side effects include constipation, neuropathy, mood swings, prone to infections, bone pain, fatigue, fever, mouth infections, taste changes, weight gain, skin issues, low platelets & low white cell count.

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  9. 9
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Just Diagnosed

    Oh No

    After a fall, spine op & then diagnosis of multiple myeloma

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  10. 10
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Cancer is back/Recurred

    Oh No

    September 2018 - pain in left arm, went to ER, X-ray revealed lesion, thereafter Ct scan revealed more lesions & increase in plasma cells , 39% as per bone biopsy

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  11. 11
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Side Effects

    This person has yet to add any details about this experience.

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  12. 12
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Loss

    This person has yet to add any details about this experience.

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  13. 13
    • Neri
    • Experience with Multiple Myeloma
    27 days ago
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    Decision Point

    This person has yet to add any details about this experience.

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