indyh07's Journey with Invasive Lobular Carcinoma

Patient: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: 5 months ago, Female, Age: 48, Stage I, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • indyh07
    • Experience with Invasive Lobular Carci...
    4 months ago
    indyh07's Avatar

    Just Diagnosed

    Oh No

    Mine began with a regular mammogram 2/11. So here I am and it's been initially diagnosed at Stage 2a invasive lobular carcinoma and mastectomy is scheduled for Thursday 3/7. Had genetics testing, MRI and I'm worried. Actually scared to death. My surgeon is phenomenal and I've put all faith in her diagnosis.

  2. 2
    • indyh07
    • Experience with Invasive Lobular Carci...
    3 months ago
    indyh07's Avatar


    Procedure or Surgery

    The drain port exit is painful after a week. I was told 7-10 days and it;s still draining so the decision was made to wait the full 10 days. Otherwise a needle would have to be used for the draining. Iodine swabs are recommended for redness and pain.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree