Scoofer's Journey with Prostate Cancer

Patient: Prostate Cancer

Patient Info: Receiving hospice or palliative care, Diagnosed: about 4 years ago, Male, Age: 58, Stage IV, Progressing despite hormone therapy: Yes

  1. 1
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Just Diagnosed

    Oh No

    For 3 1/2 years I was intermittently miserable with peri-anal itching, hives and angioedema of the lips and eyelids. No doctor could figure out what was wrong. I figured it out when I was turned down for a change to my life insurance policy because my PSA was too high. By the time I was diagnosed the cancer had already spread throughout my bones. Barring Divine Intervention, my highly aggressive prostate cancer in incurable.

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  2. 2
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Robotic assisted laparoscopic prostatectomy

    Procedure or Surgery

    Surgical Urologist pinched nerves responsible for adductor muscle of right leg. It took weeks before I could move leg inwards. Physical therapist worked on this along with necessary pelvic floor therapy.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    Began quarterly injections of Eligard (Lupron) to stop production of Testosterone from testes. For first 30 days we included Casodex to protect against a “flash” of extra testosterone being produced by the adrenal gland.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    External radiation (Instensity modulated)

    Radiation

    Surgical Radiologist offered to give me one 800 gy dose of radiation to my Sacrum. I’d lived everyday of the previous year with pain, like a charleyhorse in my right butt cheek. This treatment removed that pain.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  5. 5
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Marital Sexual Relationship, Job, Anonymity (Now I'm That Cancer Guy)

    Loss

    Though my wife and I can still make ways to be "physically together", the artificial means necessary make it more painful than sensual. Great Loss!

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  6. 6
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Body part/function

    Loss

    Nerves controlling erections and all my seminal vesicles were fully involved by cancerous cells and required removal. Spontaneous erections were lost. My wife and I rarely try physical intimacy in the form of sex since taking shots to produce erections kills all spontaneity.

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  7. 7
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Intravenous radioactive drugs (radiopharmaceuticals)

    Radiation

    After 2 years on Lupron (ADT) PSA was rising so we tried Radium223 dichloride. Being chemotherapy naive, my body tolerated the drug very well and I completed all six treatments.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  8. 8
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Finished treatment

    Celebration

    Having studied European Art & Architecture in college, my wife and I visited Paris, Venice, Florence, and Rome to celebrate finishing all six Radium 223 treatments. Wanted to be sure to take that “big” trip before I became too feeble.

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  9. 9
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    I started quarterly shots of Xgeva to fortify my bones which were being weakened from the lack of testosterone in my body. I agreed to this treatment in spite of the knowledge there was a 1-2% chance of developing a rare disease called Medically Related OsteoNecrosis of the Jaw.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  10. 10
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Decision Point

    This person has yet to add any details about this experience.

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  11. 11
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  13. 13
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Pain medicine

    Drug or Chemo Therapy

    Pain management began with Ultracet, a synthetic opioid, but now I’m on Hydrocodone, a true opioid, which helps take the edge off my bone pain.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  14. 14
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Medicine Related OsteoNecrosis of the Jaw

    Oh No

    By 9/2018 one of the mouth ulcers seemed to be permanent along with pain on left side of my jaw. I began refusing bone strengthener until I could get to the bottom of this problem. Endodontist diagnosed a hole in my gums through which my jaw bone could be seen. 2/2019 an oral surgeon scraped some dead-ish jawbone down in hopes that gums will grow back over the dead-ish jawbone in the next few months. We’ll see.

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  15. 15
    • Scoofer
    • Experience with Prostate Cancer
    8 months ago
    Scoofer's Avatar

    Second line ADT - Daily oral Zytiga w/ Prednisone

    Drug or Chemo Therapy

    I was relieved to be released from hot flashes & night sweats during treatment with Radium 223, but am now enduring them again while taking Abiraterone (Zytiga).

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments