joanna1112's Journey with Papillary Carcinoma, Thyroid Cancer

Survivor: Thyroid Cancer > Papillary Carcinoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 12 years ago, Female, Age: 35, Stage I

  1. 1
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
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    Just Diagnosed

    Oh No

    I felt a lump in my neck and 3 weeks later, after an ultrasound and biopsy, was diagnosed with thyroid cancer.

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  2. 2
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
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    Surgery

    Procedure or Surgery

    Total thyroidectomy; after surgery, the impact on my daily life while trying to find the right dosage of thyroid hormone was pretty severe.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
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    Fatigue (tiredness)

    Side Effects

    Extreme fatigue after having thyroid removed

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  4. 4
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
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    Internal radiation

    Radiation

    Received I-131 (radioactive iodine); received a total of 3 treatment doses over 3 years. I experienced some immediate side effects (nausea and fatigue), but am still experiencing pain in my salivary glands.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
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    Saliva changes (thick saliva)

    Side Effects

    Pain in salivary glands after I-131

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  6. 6
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
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    Depression/Anxiety

    Side Effects

    Experienced depression about 6 months after diagnosis and treatment while trying to find the "new normal."

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  7. 7
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
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    Remission

    Celebration

    After several treatments and consistently good bloodwork, the doctor told me there was no evidence of disease!

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