Pilldr's Journey with Colorectal (Colon) Cancer

Patient: Colorectal (Colon) Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 4 years ago, Male, Age: 76, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know

  1. 1
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
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    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    Went well, no pain after surgery, Tylenol only. Fast recovery. No noticeable changes in bowel habits.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. 2
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Folfox - Red blood cells, white blood cells and platelets went very low. Had to have neulasta twice to increase white count. Had to postpone my last dose due to extremely low white count! Platelets are increasing but still low after 6 months.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
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    Taste change/loss

    Side Effects

    Lost taste completely but it returned quickly after I finished chemo. Neuropathy still a problem 3 years later.

    0 Comments
  4. 4
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
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    Low platelet counts (thrombocytopenia)

    Side Effects

    Still low but increasing 6 months after chemo.

    0 Comments
  5. 5
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
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    Fatigue (tiredness)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    Still have neuropathy 6 months after finishing chemo.

    0 Comments
  7. 7
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
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    Remission

    Celebration

    After finishing chemo PET showed I was clear of cancer!

    0 Comments
  8. 8
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
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    Cancer has spread/Metastasized

    Oh No

    PET and CT show 3 lesions in liver six months after finishing chemo.

    0 Comments
  9. 9
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    over 2 years ago
    Pilldr's Avatar

    Liver tumor removal!

    Procedure or Surgery

    Scheduled for April 4, 2019.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  12. 12
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
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    Cancer is back/Recurred

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  13. 13
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
  14. 14
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    Surgery

    Procedure or Surgery

    Liver surgery ...resection of right lobe of liver.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  15. 15
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    FOLFIRI almost killed me.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  16. 16
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    SBRT

    Radiation

    Had SBRT radiation due to reoccurrence after liver surgery.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  17. 17
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    SBRT

    Radiation

    Cancer free after treatment and at 6 month follow up.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  18. 18
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Folfox..only side effect was neuropathy.which persists 3 years later.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  19. 19
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    Surgery

    Procedure or Surgery

    Surgeon removed too much liver and can’t regenerate. Lost 80 pounds.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  20. 20
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    SBRT

    Radiation

    Cancer in liver reoccurred. Removed at UF by SBRT. Cancer free for the moment.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  21. 21
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
    Pilldr's Avatar

    Near death experience

    Side Effects

    Right hemicolonectomy. Followed by Folfox. Only side effect was neuropathy which persists. Reoccurrence in liver with surgery and resection of right lobe plus more. Surgeon did not leave enough liver to regenerate.. Reoccurrence of cancer in remaining liver. Lesions removed with SBRT at UF. No side effects. Have a liver that is too small now due to surgeon. Lost 80 pounds and there is no treatment. Cancer is in remission but suffering from very small piece of liver trying to maintain a 6’2” 200 pound body. I now weigh 140 pounds.

    1 Comment
  22. 22
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
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    Remission

    Celebration

    Remission but surgeon killed my liver.

    0 Comments
  23. 23
    • Pilldr
    • Experience with Colorectal (Colon) Cancer
    9 months ago
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    Hospitalization

    Other Care

    Hospitalized numerous times due to acites.

    0 Comments