MsRider's Journey with Appendix Cancer

Patient: Rare Cancers > Appendix Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 46

  1. 1
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
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    Surgery

    Procedure or Surgery

    Complete hysterectomy with debunking.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. 2
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
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    Surgery

    Procedure or Surgery

    Cytoreductive surgery. Was expecting HIPEC. Could not perform HIPEC because tumors were in removable.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Port surgery was pretty easy and not painful. My port has been a great asset to my treatment. I’m very glad I had it done.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  4. 4
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Put on Folfiri with Avastin. Hair loss and fatigue were the worst of it. Has mild nausea.

    Easy to Do: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
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    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    After chemotherapy infusions I was moved to oral chemo called Xeloda. Gave me hand foot syndrome, but I was still able to work.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Surgery

    Procedure or Surgery

    Debunking and HIPEC performed. Doctor was hopeful that it was curative. Very hard recovery. Got a staph infection. Was down for three months. Cancer recurred within 3 months.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  8. 8
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Surgery

    Procedure or Surgery

    Surgery to remove tumor inside bladder. Catheter for a week after.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. 9
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Long-term catheter

    Procedure or Surgery

    Nephrostomy tube place. Collection bag for urine due to blocked ureter. Very painful. Had for 5 months.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  10. 10
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Folfox with Avastin. Horrible cold sensitivity. Neuropathy. Bloody nose.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  11. 11
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Chemo brain

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  13. 13
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Depression/Anxiety

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  14. 14
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  15. 15
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Fatigue (tiredness)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  16. 16
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  17. 17
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Hair loss (alopecia)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  18. 18
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Hand foot syndrome

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  19. 19
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
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    Hot flashes

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  20. 20
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Infertility (unable to have children)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  21. 21
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  22. 22
    • MsRider
    • Experience with Appendix Cancer
    6 months ago
    MsRider's Avatar

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments