LoverOfGynOncs' Journey:

Survivor: Ovarian and Fallopian Tube Cancer > Epithelial Ovarian Carcinoma > Clear Cell

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: 11 months ago, Female, Age: 38, Stage I

  1. 1
    6 months ago
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    Tumors growing ,....

    Oh No

    Out of no where back in November of 2018,..... I was Not fitting in clothing, massive weight gain over two months, bladder incontinence, no pain,.... we never thought I had cancer! Went in to the reg MD for a checkup, got a sono and bloodwork (thinking there was a baby or miscarriage) and then a CT scan. I was then referred to GYN ONC,... still had no clue there was cancer brewing inside! Saw the tumors but no one thought they were cancerous (because of how fast they grew and out of no where they came, without pain or any other major signs/ precursors !)

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  2. 2
    6 months ago
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    Full Hysterectomy , bilateral salpingo oophorectomy, Removal of fluid from tumor, endometriosis removal from bowels and intestines & back, implant chemo port surgery

    Procedure or Surgery

    Surgeries were scary going in to them! But felt very comfortable and confident in my teams of surgeons and doctors! The P/A’s, nurses , phlebotomists and anesthesiologists, couldn’t have been nicer and more informative! Always hearing my concerns & explain-ing their expertise! Ask questions , it helps to feel as comfortable as possible! No question is dumb or not important! It’s your body and your health!

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    6 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    So Chemo is the part we all I’m sure fear the most , the cancer can be cut or radiated ,.... we can have the mental strengths to get through the procedures needed for that! The chemo (for me) was my mountainous hurdles! I didn’t care about the hair loss. Also mentally going in to each session I was able to talk myself into a good strong mindset, (for me through prayer) but just having to submit to going was my battles! The knowing and praying and thought processes of , is it gonna work?,.. , am I going through all this for what!? This Was the tricky mental game that went on in my head! But the chemo itself was ok to deal with as I had an amazing team of P/A’s, nurses, dietitians and pharmacists helping me! I shared every small lil twinge and nervous feeling with them when they were monitoring me to make sure they could do their best to help me (with the drugs and reactions) The impact of chemo on my daily functioning was a lil more effective than I thought would be! (They did warn me) but I chose to be optimistic! Lol! So give yourself time to go through this huge battle, the ups the downs the highs and lows and the recovery! Don’t force yourself to be anything more than your feeling in every moment! Be PATIENT WITH YOU! Be happy for each morning you wake up on the other side of chemo! You will get through this! It is hard but our bodies are amazingly resilient ! Be grateful for your life! Be clear as to WHAT YOU NEED FROM YOUR FMAILY FRIENDS AND LOVED ONES! (They just want to help!) Love yourself no matter how weak, sick, bald, nauseous, sad, or different you become, you are fighting one of your greatest battles! Go easy on yourself and those closest to you!

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  4. 4
    6 months ago
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    Chemo brain, flulike symptoms, fevers, child, sweats, low white blood cells, fatigue fatigue fatigue, vagina dryness, hot flashes, allergic reaction to IV pre chemo drugs, constipation, dizziness, peripheral neuropathy, hair loss, mouth dryness, teeth p

    Side Effects

    All of my symptoms were as normal as they had described and none terribly bad to where I couldn’t handle them,... I just took a deep breathe when they seemed scary and overwhelming and said ok this is the chemo,... it too will pass,...and some of the ones they had prepared me for never even happened to me (EVERY REACTS DIFFERENTLY!) I know I’m missing some of my side effects listed above but that’s s good start ! Just be sure to write them down or tell your onc team!

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  5. 5
    6 months ago
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    Everyday you get through should be a CELEBRATION! Celebrate the small things! Be happy your everyday ONE STEP CLOSER TO A NEW CHAPTER IN THIS WILD JOURNEY!

    Celebration

    I actually haven’t had a celebration party yet! So much goings on! I will though! Not only did I go through this but my husband was going through it ALL with me just as much ! And my family! They went beyond all aspects of what you’d imagine parents and siblings ever having to or wanting to do for you! I pray every cancer warrior has a team of loved ones (family or friends) beside them to fight, every second!

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  6. 6
    6 months ago
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    Body parts, fertility, womanhood (in a sense), hair all over (every spec!), mental weight(cause only the most important things matter now!) , uncomfortableness( because I have become comfortable with being uncomfortable!) ,

    Loss

    My loss isn’t that much, because for every loss in the sense of the word I HAVE GAINED! With my loss of body parts (I have gained a healthier body ) , With my chance of fertility cut out completely (I have gained more of a every second appreciation for our lil sweet pea we were so blessed to adopt 6 months BEFORE all this happened!) With my “womanhood” in a sense, gone, I have gained a new appreciation for the parts I still have and (I know the parts are only parts) and I AM STILL ME,... and I AM SO BLESSED The loss of hair all over,... I was head strong going into the first of the callings out, but as time went on the eyelashes and brows were (I’m not going to lie, they were a bit more to deal with emotionally) but ya get over it quick when ya realize YOU ARE STILL YOU AND YOU ARE SURVIVING AND STILL ALIVE! (Hopefully it will all grow back one day!) And the Mental weight loss side of all this is gainfully freeing ! The things that seemed important ARENT NOW! The worries the stresses the tasks the mental clarity (even though you’re in a chemo fog) is still great because lil things that were bothersome aren’t as important and don’t take up my energy anymore the focus ahead has shifted!

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  7. 7
    6 months ago
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    Decisions were abundant! For so many different things!

    Decision Point

    Every step of the way from just starting out and seeking out a referral to a GYN ONC and making that drive to get there, (hours away) the financial planning, the insurance follow ups, the preparatory plans of actions and the surgery go ahead, the decisions of dietary choices daily, the mental decisions DAILY to be a warrior or a victim, a fight daily to get up get moving(even if only to wash my face) every day we have choices, we all have battles, in all aspects of life , everyday we decide what we are going to do with this new day! (Decisions to pray were my greatest strengths) Make the best DECISIONS FOR YOU, your strengths, your health, your life! This diagnosis cannot take from you more than you allow it to take! Decide, to not give it more than you can spare to remain mentally strong!,..... And mindfully in control of your health and wellness!

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