Ellen007's Journey with Endometrial (Uterine) Cancer

Patient: Endometrial (Uterine) Cancer

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: 11 months ago, Female, Age: 61, Stage 0

  1. 1
    • Ellen007
    • Experience with Endometrial (Uterine)...
    6 months ago
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    I had to decide to have my whole uterus removed.

    Decision Point

    My family was diagnosed with Lynch Syndrome less than a year ago. I was told due to my age and the uterine cancer history in my family that I should have my whole uterus removed.

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  2. 2
    • Ellen007
    • Experience with Endometrial (Uterine)...
    6 months ago
    Ellen007's Avatar

    Surgery

    Procedure or Surgery

    I had my whole uterus and everything connected to it removed due to Lynch Syndrome that runs in my family. I was bedridden for 6 weeks after surgery which is why I said it was not a minimal impact to my daily life.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Ellen007
    • Experience with Endometrial (Uterine)...
    6 months ago
    Ellen007's Avatar

    Hot flashes

    Side Effects

    Even though I had been through menopause I had hot flashes and was more emotional, mostly crying because of little things. I was given a prescription form of Mira lax in the hospital, which helped with constipation. I did not have much pain, it may be because I told my doctor right away I wanted pain control and was on medication throughout most of my recovery period. Also I was having bladder issues, and wore pads until my bladder was in better control.

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  4. 4
    • Ellen007
    • Experience with Endometrial (Uterine)...
    6 months ago
    Ellen007's Avatar

    Just Diagnosed

    Oh No

    When I had ultrasounds done it showed my endometrium lining was 3mm. This is not a trigger for cancer. After my removed organs were evaluated and tested it showed I had uterine cancer. The doctors did believe it was contained in the uterus and had not spread. It appeared to be just the beginning of cancer.

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  5. 5
    • Ellen007
    • Experience with Endometrial (Uterine)...
    6 months ago
    Ellen007's Avatar

    I have to see the cancer doctor for the next five years due to the cancer diagnosis.

    Other Care

    I am not out of the woods and still have to keep up with yearly checkups of other organs for the rest of my life. I am very pleased that this surgery showed I had just caught the cancer before it had spread. I had polyps in my colon and have to keep a close eye on this.

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