Odi's Journey with Adenocarcinoma, Colorectal Cancer

Survivor: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 2 years ago, Female, Age: 46

  1. 1
    • Odi
    • Experience with Adenocarcinoma, Colorectal...
    15 days ago
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    Misdiagnosed

    Oh No

    I was misdiagnosed for a long time with IBS, which eventually was correctly diagnosed as colorectal cancer.

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  2. 2
    • Odi
    • Experience with Adenocarcinoma, Colorectal...
    15 days ago
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    Chemotherapy

    Drug or Chemo Therapy

    Had a port inserted for the chemo infusion, was a good decision.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Odi
    • Experience with Adenocarcinoma, Colorectal...
    15 days ago
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    External radiation

    Radiation

    Painless, quick (-ish). Externally had 'sunburn' like damage to lower back - skin was red and sensitive, could not lie on my back. Internally it caused more issues - hardened tissue.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • Odi
    • Experience with Adenocarcinoma, Colorectal...
    15 days ago
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    Removal of rectal tumor

    Procedure or Surgery

    First had a colostomy as my tumour was blocking my intestines. Then had a port inserted. Then chemo & radiation to try and shrink tumour before surgery. Had my 'big' surgery which involved removal of tumour & 1/3 of my colon, creating a J-pouch, a radical hysterectomy e.a., reversing colostomy and creating a ileostomy. Reversal of ileostomy in 2018.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • Odi
    • Experience with Adenocarcinoma, Colorectal...
    15 days ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    Had neuropathy in my hands & feet, also partially up my legs. The hands eventually recovered. My legs are fine, my feet have only partially recovered.

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  6. 6
    • Odi
    • Experience with Adenocarcinoma, Colorectal...
    15 days ago
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    Low white blood cell counts (neutropenia)

    Side Effects

    Had to occasionally take a break from chemo for my white blood cells to recuperate. Also had to get Nepogen injections in my stomach (administered at home).

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  7. 7
    • Odi
    • Experience with Adenocarcinoma, Colorectal...
    15 days ago
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    Body part/function

    Loss

    Lost feeling in my bladder, some body parts and a sharp mind!

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