gttngd's Journey with Bone Cancer

Patient: Bone Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Female, Age: 68, Stage Recurrent

  1. 1
    • gttngd
    • Experience with Bone Cancer
    4 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    Lost 50 lbs & the ability to walk normally due to weakness in 2016. I had to have chemo for a stem cell transplant.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • gttngd
    • Experience with Bone Cancer
    4 months ago
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    Other

    Procedure or Surgery

    Stem cell transplant left me incapacitated for about 1 year.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • gttngd
    • Experience with Bone Cancer
    4 months ago
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    Had to decide to have a stem cell transplant or not. Given a 50/50 chance of survival.

    Decision Point

    It was going to be a long arduous recovery and I was warned of it's difficult recovery. It took at least a year to regain my strength but chemo brain stayed with me for about 2 years.

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  4. 4
    • gttngd
    • Experience with Bone Cancer
    4 months ago
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    Just Diagnosed

    Oh No

    Diagnosed with a very rare bone cancer; Myeloproliferative Neoplasm that was Myelofibrosis.

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  5. 5
    • gttngd
    • Experience with Bone Cancer
    4 months ago
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    Bone thinning (osteoporosis)

    Side Effects

    There are at least ten side effects on the list of side effects. I experienced side effects of chemotherapy, the stem cell transplant (neutropenic), idiopathic thrombocytopenia; weight loss, anemia, dry eyes, mouth sores, constipation, bone pain, osteoporosis from steroids, weakness & inability to walk unassisted. All comes with a stem cell transplant in an older patient. Recovery was about 2 years. Chronic GVHD of the lungs now but doing well.

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  6. 6
    • gttngd
    • Experience with Bone Cancer
    4 months ago
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    Hospitalization

    Other Care

    Hospitalized for one month, lodged in an American Cancer Society housing, home care from PT, OT, RN from Lifetime Care. Husband is caretaker. Had several hospitalizations since 2016 transplant for acute illnesses.

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  7. 7
    • gttngd
    • Experience with Bone Cancer
    4 months ago
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    Birthday

    Celebration

    I have celebrated 3 years of my re-birthday! I am 100% donor cells 3 years later.

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  8. 8
    • gttngd
    • Experience with Bone Cancer
    4 months ago
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    Body part/function

    Loss

    Lung damage, skin rash & joint pain from transplant.

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