GBMsurvivordad's Journey with High-Grade Astrocytoma (also called G...

Caregiver: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 18 years ago, Female, Age: 24

  1. 1
    17 days ago
    GBMsurvivordad's Avatar

    External radiation

    Radiation

    the side effects still showing up 17 years later

    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    17 days ago
    GBMsurvivordad's Avatar

    Just Diagnosed

    Oh No

    collapsed at school 7yrs old..... mom took home......temp dropping..calls dr....no worry......calls dad at work....dad say go to er.......brain hemorrhage....airlifted to Oakland childrens hospital.....the nightmare has begun...

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  3. 3
    17 days ago
    GBMsurvivordad's Avatar

    Surgery

    Procedure or Surgery

    GBM confirmed...4 surgeries....80% right brain removed

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    17 days ago
    GBMsurvivordad's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Temodar- 1st child to receive in US

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    17 days ago
    GBMsurvivordad's Avatar

    Return home after 4 months

    Celebration

    quiet at home

    0 Comments
  6. 6
    17 days ago
    GBMsurvivordad's Avatar

    to treat or not to

    Decision Point

    we were given the choice...."prolong the inevitable , quality of life, maybe new treatments in 5 years...if she lasts that long

    1 Comment
  7. 7
    17 days ago
    GBMsurvivordad's Avatar

    lifetime caregiver required

    Other Care

    Mom did it dad worked, dad has heart attacks- no more work, mom passes away, older sister takes over caregiving (room and board with husband) of dad too.

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