mrsrhone61's Journey:

Survivor: Sarcoma - Adult Soft Tissue Cancer > Liposarcoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Female, Age: 55, Stage II

  1. 1
    almost 5 years ago
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    Diagnosed

    Oh No

    10 yrs ago I was diagnosed with a liposarcoma that was 26cm X 13cm.in my rt thigh. I was told that it had been growing for 5-7 yrs and it had engulfed most of my major arteries and vessels. Dr. said I would need radiation to poss. shrink tumor and pull away from other vessels or I could loose use of leg. He also said that because it was so large there was a good chance it had spread to my lungs.

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  2. 2
    almost 5 years ago
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    Radiation

    I had 6wks of radiation to a wide area of my rt. thigh. The worst part had to be the planning. they had to take several mapping pictures which left me all sorts of positions on the cold hard table. Once the mapping was done the rest went fast. I was in and out within 15min or less. I do remember telling the tech. when he had to mark the areas with a tatoo dot that he was not exactly what I expected my tatoo artist to look like ha ha. The leg did get red and a little raw but being that im fair skinned I have been sunburned several times and this would probably rate up there as a very bad burn.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    almost 5 years ago
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    Surgery

    Procedure or Surgery

    Tumor was removed with a wide resection saving all major arteries and vessels. I did lose a superficial nerve that runs down the center of my lower leg. Basically front of lower leg is numb but doesn't affect normal life. Dr. said tumor had shrunk by 50-75% much better than what he expected. All margins came back clear.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    almost 5 years ago
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    Remission

    Celebration

    Every year we celebrated when he told us that I was clear. Even with how large of a tumor it was nothing had spread. At 5 years the dr said that we could really breath a sigh of relief since these types of tumors usually reoccur within 3-5 yrs if at all. At my 7yr. check-up Dr. said chest x-ray looked clear and I really didn't need to see him but we decided once a year just for chest x-ray til 10 yr mark.

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  5. 5
    almost 5 years ago
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    Cancer is back/Recurred

    Oh No

    In Dec.of 2011 I found a lump growing just above where the previous one was. We called our Dr. and he got us in the next day. Dr. said that he was pretty sure it wasn't a sarcoma since it had been almost 10 yrs and very very few return after that long. He thought it was a fluid filled cyst or lipoma(non-cancerous) tumor. the following day was the MRI. Next came the results which showed a tumor 6cm x3cm. the following day we went to his office for a biopsy which he was only able to get very little tissue to sample. He was still thinking that it could be something other than liposarcoma. Next day biopsy results showed myxoid cells which meant it had to come out. The good news was that nothing had spread to my lungs.

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  6. 6
    almost 5 years ago
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    Surgery

    Procedure or Surgery

    About a week after second diagnoses I had surgery to remove sarcoma with wide ressection. During this surgery the Dr. nicked a superficial artery which meant that surgery went longer than expected and I had to spend an extra day in the hospital. I remember waking up in recovery with a subclaven line in my neck. This was put in to give Dr. more access when the artery was hit. I had to take cumadin shots when I came home which are given in the stomach. I was sent home with an imobilization device and bed rest for 2wks. after that limited mobility.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  7. 7
    almost 5 years ago
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    Decision Point

    Next came the decision to have more radiation or just monitor me every 6 months with MRIs to check for reoccurance. Radiation Dr. thought that if I were to have more radiation the effects from the previous and current radiation would have a traumatic effect on my skin, ligaments, arteries and vessels 10yrs from now. The reason they were considering rad. is that although the margins were clear the tumor did butt up againist some vessels that made it very difficult to scrape the tissue. We decided to forgo radiation and just settle with the MRIs. My Dr. did say that we would continue with chest x-rays.

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  8. 8
    almost 5 years ago
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    Oh No

    This person has yet to add any details about this experience.

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  9. 9
    almost 5 years ago
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    Diagnosed

    Oh No

    At our 6 month follow-up MRI Dr. said that a sm. nodule is seen in area of where second tumor was removed. Dr. wants to wait 3 mon. to see if there is any changes. Mass is 1.6 x1.2cm. too small to biopsy. Dr. said it could be fluid under scar tissue, inflamed scar tissue, or another reoccurance. If it is reoccurance than it may be more aggressive since these are usually slow growing and to have one show up already could be a different cell make-up.

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