JoJoT's Journey:

Patient: Leukemia

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: over 4 years ago, Female, Age: 46

  1. 1
    • JoJoT
    • Experience with Leukemia
    over 4 years ago
    JoJoT's Avatar

    Oh No

    Not sure where to land with this. Asked during two appts if anyone had discussed my last bloodwork with me? I answered no and the first Doc began to show me numbers and shooting off acronyms-ALL/SLL/CLL. I had to stop him and tell him I did not know what any of that meant. He said oh, it seems your bloodwork shows you may have Leukemia....since 2002. I blew it off as a "that's this guys opinion"... I saw my neurologist the next day, a little more seasoned but same Convo... Your boodwork shows CLL since 2002. Have you contated Hematology/oncology yet? I said the doc yesterday sent in a stat request for me to be seen. I talked with them Friday, said looking at my records will let me know what additional tests are needed and will call for my first appt. Been going a little bonkers past seven days.... Now What?

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  2. 2
    • JoJoT
    • Experience with Leukemia
    over 3 years ago
  3. 3
    • JoJoT
    • Experience with Leukemia
    over 3 years ago
    JoJoT's Avatar

    Decision Point

    So the doctors said that the CLL until it becomes acute is more of a nuisance...it has been the catalyst of my fatigue, female problems, migraines, over all pain. They will work with me on treatment but when they found the tumors on my ampulla and in my dodenum they said that had to be adressed first as there was no cure for small intestine cancer.

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