Jayne's Journey with Colorectal (Colon) Cancer

Survivor: Colorectal (Colon) Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 12 years ago, Female, Age: 55, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IV

  1. 1
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    Jayne's Avatar

    Diagnosed

    Oh No

    I was dealing with my husband's Stage IV Colon Cancer diangosis and at his urging, went for a screening. At 44, I never expected the results to come back positive. I was so numb from dealing with his diagnosis, it was surreal that we would both be going through the exact same thing at the same time.

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  2. 2
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    Jayne's Avatar

    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    Let's just say the procedure itself was not so horrible, but I had major issues with the temporary colostomy. I discovered that I have a severe reaction to adhesive and that created problems beyond what anyone told me to expect. After I had my reversal, things improved greatly, although that intoduced it's own set of issues.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I had two rounds of chemo (2 years after my surgery, the cancer was discovered in my lungs). The first time (2005 and prior to surgery) was 5FU, the second time (2007) was Xeloda, Oxaliplatin and Avastin.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Jayne's Avatar

    Remission

    Celebration

    After 10 years of dealing with my Stasge IV colon cancer, I have reached the magical 5 year NED mark. Last week's scan will be the final and I was officially released from care with only an annual blood test for my CEA levels. Yeah, I can do that! While I am elated at my new status, I am also aware of the many friends and loved ones who have not been as fortunate as me. It's a bittersweet celebration but one I am so very thankful to have!

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  5. 5
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    Jayne's Avatar

    External radiation

    Radiation

    I had 6 weeks of daily radiation (30 treatments) and other than a severe bladder infection, the radiation was more of a hassle getting there every day but not painful. I did experience severe fatigue towards the end of the regiment but that was expected.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  6. 6
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    Jayne's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

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  7. 7
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    Jayne's Avatar

    Fatigue (tiredness)

    Side Effects

    I still battle with long term fatigue. I now take monthly B-12 shots which help a great deal.

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  8. 8
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    Jayne's Avatar

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    Jayne's Avatar

    Lost loved one

    Loss

    My husband was not as fortunate as I was, he passed away on May 24, 2006. He will always be my hero. He fought the most difficult of battles but kept his sense of humor and great attitude to the end.

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  10. 10
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
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    Decision Point

    This person has yet to add any details about this experience.

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  11. 11
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 5 years ago
    Jayne's Avatar

    Hospice

    Other Care

    We used Hospice services towards the end of my husband's illness. They were wonderful beyond belief.

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  12. 12
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Jayne's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  13. 13
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    3 months ago
    Jayne's Avatar

    Surgery

    Procedure or Surgery

    4 Video Assisted Thoracic Surgery procedures, the last time had a lobe removed. no serious problems and way better than having my rib cage cut open!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  14. 14
    • Jayne
    • Experience with Colorectal (Colon) Cancer
    2 months ago
    Jayne's Avatar

    Remission

    Celebration

    So, I reached my 5 year NED mark on Wed, 12/7/16 in which I have officially beat Stage IV colon cancer. I am feeling both elated (for my win) but sad (for all those who lost, including my late husband) but am thankful to still be here. No more scans required, just annual blood work. Yeah...I can do that.

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