Jeepinbob's Journey with Cervical Cancer

Spouse/Partner: Cervical Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 43, Stage IIIA

  1. 1
    almost 5 years ago
    Jeepinbob's Avatar

    Diagnosed

    Oh No

    We found out that my wife has cervical cancer in December of last year. She had been having problems getting a pap smear for sevearl months all along the general practitioner treating infection and such, when that finally got cleared and she was still bleeding too much to do the PS, we went to a gyno who suspected, took a biopsy and confirmed cancer.

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  2. 2
    almost 5 years ago
    Jeepinbob's Avatar

    Decision Point

    One of the worst feelings is getting different information from different Doctors and places and having to make a decision knowing that the wrong decision can be REALLY bad for the one you love. And knowing that there may not be a right decision.

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  3. 3
    almost 5 years ago
    Jeepinbob's Avatar

    External radiation

    Radiation

    My wife had to go through two rounds of radiation because our RO did not have much experience with cervical cancer. He made the field too small. We are using MD Anderson as our second opinion and they had warned us that cervical cancer is not that common and that we needed to find a surgeon (for the internal) that had enough experience. They gave us guidelines but they didn't seem to be too worried about the external. When we had to go to MD Anderson for the internal, they noticed that the field missed two lymph nodes that they (MD Anderson) felt were close enough to the cervix to warrant another round of radiation. I was not happy about that. My wife did very well with the external radiation and the side effects were not too bad, but the second round did cause her a bit of gastro and bowel issues. Plus we are still, 5 months after, working on getting her blood numbers back up. I am convinced it is taking so long because she had about 2 months of continuous radiation when she should have had only 30 days! But you live and you learn.

    Painless Experience: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    My wife had weekly infusions of a low dose of Cisplatin. She tolerated the chemo pretty well once we figured out the support meds. They did not explain that very well. We got her first infusion, which includes the support meds (anti nausia, acid reducer), and were in the cancer center the next day for something else and they said we had infusion. We said she only got it once a week. We eventually figured out that the was for support med and that if she didn't need them, we didn't have to get them. She was feeling okay so we passed. Well that night she got really sick. We got the support meds the next day and the two days following every infusion after that. As long as we kept up on the support meds her side effects were not too bad. Imapct on daily life is mostly due to three weekly visits to the cancer center. Makes it hard to work.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    almost 5 years ago
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    Internal radiation (Brachytherapy)

    Radiation

    My wife had to have two low dose internal treatments. We tried the high dose (5 outpatient procedures) but she didn't tolerate it with only sedation as opposed to being out completely. We had a great Radiation oncologist, we have been told she is one of the best in the country, if not the best. But the internal that lasted about 48 hours (more like 72 including the surgery to implant the devices). It was very rough on her but she is a trooper and took it as in stride as she could. During both treatments, she could not eat ANYTHING. every thing we tried came back up. They did help a lot based on what the RO told us, but we are glad there were only two of them.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  6. 6
    almost 5 years ago
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    blood and healing

    Other Care

    Right now we are just focused on her healing. She feels pretty good and has good days and bad days, but the Oncologist is waiting till her red blood count stabilizes. I think this is taking so long due to her having to endure two rounds of external radiation. He thinks maybe 4 or 5 months till he is happy with her numbers. Then we start another 6 months of chemo. So now we wait.

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