MyMomsDaughter's Journey with High-Grade Astrocytoma (also called G...

Family/Friend: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

  1. 1
    over 4 years ago
    MyMomsDaughter's Avatar

    Diagnosed

    Oh No

    My mom (age 56), also my best friend, had been experiencing a lot of confusion, forgetfulness and was very emotional and distracted. We visited her Family Doctor who assumed this was all because of depression. I knew better but decided to go along with it and she started her on anti-depressants. A week or so went by, with the symptoms getting worse; my stepdad called the doctor’s office and demanded an appointment. She was able to see a NP who set up an MRI. On June 21, 2012 at about 5:15PM, I received the phone call. The MRI showed a brain mass. She was immediately sent to the ER. The following day, they took her for surgery and I felt my heart rip from my body as they rolled her off. After a good 4 or more hours (I lost track of time), the Neurosurgeon let my stepdad and I know that it was, in fact, a brain tumor. I never thought I would ever experience heartbreak like that. And our lives are forever changed.

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  2. 2
    over 4 years ago
    MyMomsDaughter's Avatar

    Oh No

    I am still trying to figure out how this website works and how to manuever around it to get the most out of it. I'm still in an "Oh No" because I'm not really sure what to expect or have no real answers. I am hoping that more than reading about other people's experiences, I am able to use this to express my own feelings. I am 31 and my moms only biological child. She is married to a wonderful man of 10 years with children and grandchildren of his own. We consider them part of us, not "step". But I am having a difficult time forgiving myself for not yet getting married, having children or graduating college. I am back in college now and I have been blessed with a good job and a good salary but feel like I am lacking something in my life. I want her to be there to experience me getting married and having children. I need her there. I called her last night because I had been stung by some bug. It hit me when I hung up(after she told me exactly what to do! :-) ....what would I do if she wasn't there to call. I need her to be proud and happy and comfortable knowing that I have someone at home to help me through whatever it is to come. I know she is afraid for me, just as she is for herself. I will say though, she has the best spirit about all this. I am the one with the dark cloud over my head, and I do my very best of keeping this from her. But she knows. I'm looking for a way to be ok. And to be as positive as she is. She is my hero.

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  3. 3
    over 4 years ago
    MyMomsDaughter's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I have this gut feeling that more should be done to fight this thing. She began radiation on Monday, July 16. She will have radiation treatments 5 days a week for 6-7 weeks. She started Chemo pills (Temador) yesterday, Tuesday, July 17th. She is also on an anti-seizure medication, steroid, anti-depressant (from the initial diagnosis) and now the Temador, an antibiotic to prevent infection and anti-nausea medication. When I asked why Temador and not some other form, I was told it was the standard of care. I wanted to jump up and scream that "MY MOTHER DESERVES MORE THAN THE STANDARD" but at the end of the day, I have to trust them.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    over 4 years ago
    MyMomsDaughter's Avatar

    External radiation

    Radiation

    Today was her 3rd day of radiation. She says she is experiencing no pain. Many more days to go.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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