kymom's Journey:

Patient: Breast Cancer > Paget Disease of the Nipple

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 6 years ago, Female, Age: 54, Stage II, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • kymom
    • Experience with Paget Disease of the Nipple
    almost 5 years ago
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    Misdiagnosed

    Oh No

    I was told in my hometown that I had Invasive Mammary Carcinoma. I went out of town for a second opion and was told that I was misdiagnosed I have Paget Disease of the Nipple with underlying breast cancer.

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  2. 2
    • kymom
    • Experience with Paget Disease of the Nipple
    almost 5 years ago
    kymom's Avatar

    Double Mastectomy

    Procedure or Surgery

    I had double mastecomy and sentinel lymph node biopsy with breast reconstruction at the time of surgery.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • kymom
    • Experience with Paget Disease of the Nipple
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I decided to take the more aggressive chemo over a shorter time span. I took 3 chemo drugs at once. Taxotere, Cytoxan and Adriamycin. I ended up being allergic to the Taxotere so they increased the dosage on the other 2 chemo drugs.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • kymom
    • Experience with Paget Disease of the Nipple
    almost 5 years ago
    kymom's Avatar

    Allergic reaction

    Side Effects

    Allergic reaction to chemo drug. Fatigue, hair loss, heart problems/heart damage, hot flashes, blood pressure problems, low white blood cells count, mouth sores, nausea/vomiting, neuropathy in feet and hands, swelling, weight gain, memory loss and pain.

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  5. 5
    • kymom
    • Experience with Paget Disease of the Nipple
    almost 5 years ago
    kymom's Avatar

    Home care

    Other Care

    This person has yet to add any details about this experience.

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