kashcra's Journey:

Patient: Breast Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 63, Stage IIA, HER2 Positive: Yes, ER Positive: Don't Know, PR Positive: Don't Know

  1. 1
    • kashcra
    • Experience with Breast Cancer
    almost 5 years ago
    kashcra's Avatar

    Diagnosed

    Oh No

    I have many types of cancer in my family, but NOT breast cancer, so I was in shock when I was diagnosed after a routine mammogram.

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  2. 2
    • kashcra
    • Experience with Breast Cancer
    almost 5 years ago
    kashcra's Avatar

    Decision Point

    had to decide between a lumpectomy or mastectomy, I chose lumpectomy.

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  3. 3
    • kashcra
    • Experience with Breast Cancer
    almost 5 years ago
    kashcra's Avatar

    Lumpectomy

    Procedure or Surgery

    I ended up having 2 lumpectomys, and a lymph node removed. The first procedure didn't have clean edges, so it had to be repeated. Two days before the second surgery, I was informed I was also having a port placed. Chemotherapy had never been discussed, my surgeon had assumed the radiation oncologist had discussed it with me. He had not. Imagine my mindset when on the way to the operating room, my surgeon is saying what a shame it was that I was going to lose my hair! She was very upset when she found out I had not been told about chemo. At this point, I was doubting my decision to have the lumpectomy. She assured me that since a lymph node was involved, it would not have stopped me from having chemotherapy. Speaking of chemo, I just finished 4 weeks ago, and am still having side effects. It was the worst experience of my life. I am now waiting for radiation to start. And on top of all that, my pet scan showed an abnormal thyroid nodule, and the biopsy couldn't rule out cancer, so I am having 1/2 removed this week and tested. I hope the pathology report comes back good, so they don't have to remove all of the thyroid.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • kashcra
    • Experience with Breast Cancer
    almost 5 years ago
    kashcra's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemotherapy was a XXX! I was hospitalized after the first treatment, for 3 1/2 days, with severe dehydration and pain. The neulasta shots were equally bad, with all the muscle pain, and leg swelling. My last chemo treatment was almost as bad, I had to go back to my oncologist's office to get re-hydrated several times during the ordeal. BTW propel water works very well when you are able to keep liquids down, as well as apples and bananas. However I cannot even LOOK at Propel now, it is a painful reminder.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • kashcra
    • Experience with Breast Cancer
    almost 5 years ago
    kashcra's Avatar

    Depression/Anxiety

    Side Effects

    Pain, diarrhea, depression, anger, fear. I thought chemo was bad, but the side effects from meds seems worse. At least chemo ends, and the meds are spos to last 5 years. And even though I am older, the scars and scar tissue sucks!

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  6. 6
    • kashcra
    • Experience with Breast Cancer
    almost 5 years ago
    kashcra's Avatar

    External radiation

    Radiation

    I am currently waiting for radiation to begin. I have discussed it with my chemotheray oncologist. I had assumed since my surgeon said she got all the cancer removed, that the radiation was preventative. She said no, there are cancer cells that are too small to be seen, so my radiation is another treatment procedure. I was floored! All this time, I had assumed the cancer was gone. I was already disappointed when I couldn't get the brachytherapy. Apparently it is not an option when lymph nodes are involved. My surgeon was awesome, and she even thought they caught the cancer early, my first diagnosis was stage 1, now it is stage 2a.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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