RickT1953's Journey with Prostate Cancer

Patient: Prostate Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 4 years ago, Male, Age: 63, Stage III, Progressing despite hormone therapy: Don't Know

  1. 1
    over 4 years ago
    RickT1953's Avatar

    Diagnosed

    Oh No

    All started with a little blood in my semen. Feel pretty strong physically. PSA came back as 24. A little high I gather from seeing some of the others on this site. Doc thought maybe it was infection so we did a week of antibiotics. PSA came down to 20.5. Doc did a biopsy. 4 outta 10 samples came back positive. Described as aggressive, Gleason 8. Not what I was hoping for. Did MRI to see if it spread to other parts of the body. Seemingly confined to prostate but seminal vessals suspect. Yesterday did bone scan to see if it spread to the bones. Waiting to get result.

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  2. 2
    over 4 years ago
    RickT1953's Avatar

    Treatment Options

    Decision Point

    The result of my bone scan came back negative (yay) so my prostate cancer is operable. I have to meet with my current doctor 7/27 to discuss what surgery would entail. I believe since my cancer is aggressive, surgery is only option if I want any hope of living a long life. I am also in process of getting an appointment for a second opinion with an organization called City of Hope which is a cancer treatment center in the San Gabriel Valley which is part of the greater Los Angeles area.

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  3. 3
    over 3 years ago
    RickT1953's Avatar

    Choose Doctor

    Decision Point

    The doctor at City of Hope seemed extremely experienced. While my local urologist intends to do surgery, hormone therapy & radiation the Doc at City of Hope feels the surgery is all that is necessary at this time and he performs 9 per week and has for a long time. I'm going with the experience and also the good reviews I've heard about the City of Hope.

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  4. 4
    over 3 years ago
    RickT1953's Avatar

    Robotic assisted laparoscopic prostatectomy

    Procedure or Surgery

    The actual surgery went as I expected. The recovery process was longer than I thought and a bit more painful. Not really side effects but I was incontinent for a long time. Kagel exercises pretty much useless. I was offered drugs to stablize the bladder but what really worked was physical therapy where they taught me how to use other muscles to control the bladder and how to move with those muscles engaged. I used pads for a long while, started going padless at night after 3 months. Totally padless 8 months later. Sexuality still not happening for me but Doc says it can take up to 2 years to get back to normal.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  5. 5
    about 1 year ago
    RickT1953's Avatar

    Cancer is back/Recurred

    Oh No

    It's been 3 years since my prostatectomy. Last PSA came in at 0.26. You probably know that 0.2 is the benchmark for when doctors see this a very likely recurrence. So my urological surgeon referred me to a radiation oncologist. Had initial consult with him to hear about all the probabilities whether it is in the pelvic area or not and so forth. For the moment we will see what the next PSA reading come in at and potentially do some testing to try and narrow down and determine what the next treatment steps should be.

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  6. 6
    6 months ago
    RickT1953's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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