Rathgirl's Journey with APL (M3), which Usually Has Transloca...

Survivor: Leukemia > Acute Myeloid Leukemia (AML) > APL (M3)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 4 years ago, Female, Age: 23

  1. 1
    • Rathgirl
    • Experience with APL (M3), which Usual...
    over 2 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    My port was in my upper arm. The doctor called it a PICC line. He said it was basically the same as a port that is normally in your chest area but just different name and location.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • Rathgirl
    • Experience with APL (M3), which Usual...
    over 2 years ago
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    Surgery

    Procedure or Surgery

    I had multiple bone marrow biopsies while in treatment. They are supposedly considered surgery.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Rathgirl
    • Experience with APL (M3), which Usual...
    over 2 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I was on continuous chemo for a week. I was hospitalized for that week and 3 more weeks after that because the chemo kills the bad blood cells as well as the good so my counts were dangerously low. After I was discharged I went back the mext 3 months for 3 days each month for about 30 min a day for more chemo. The only type of chemo I remember the name of is Atra aka Vesanoid for just about the whole 6 months I was in treatment.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Rathgirl
    • Experience with APL (M3), which Usual...
    over 2 years ago
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    Side Effects

    I do still a year after being told I was cancer free I do still have hot flashes. They are the worst when I am working. No matter how hot or cold it is in the building I still get hot.

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  5. 5
    • Rathgirl
    • Experience with APL (M3), which Usual...
    over 2 years ago
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    Side Effects

    I had mouth sores bad for probably up to 2 weeks. I still to this day have some damage to my gums that occurred from the sores.

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  6. 6
    • Rathgirl
    • Experience with APL (M3), which Usual...
    over 2 years ago
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    Side Effects

    All my tastes have changed. Foods that I used to love now are not really my favorite. Also smells are more distinctive. Like chilli for example. The smell of chilli makes me nauseated. I don't like chilli to begin with but now the smell really bothers me.

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  7. 7
    • Rathgirl
    • Experience with APL (M3), which Usual...
    over 2 years ago
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    Remission

    Celebration

    When I was told I was cancer free my parents and I planned a celebration party and invited everyone that helped us cope and get through it all. We basically did it as a thank you for them all.

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