Toops' Journey:

Patient: Pancreatic Cancer

Patient Info: Receiving hospice or palliative care, Diagnosed: almost 6 years ago, Male, Age: 57, Stage IV

  1. 1
    • Toops
    • Experience with Pancreatic Cancer
    almost 5 years ago
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    Diagnosed

    Oh No

    I was diagnosed with Pancreatic Cancer stage 2B.

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  2. 2
    • Toops
    • Experience with Pancreatic Cancer
    almost 5 years ago
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    Whipple Procedure

    Procedure or Surgery

    Worst surgery that I have ever had.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Toops
    • Experience with Pancreatic Cancer
    almost 5 years ago
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    Phase III Study of Chemotherapy & Chemotherapy with HyperAcute Pancreas Immunotherapy

    Clinical Trial

    This person has yet to add any details about this experience.

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  4. 4
    • Toops
    • Experience with Pancreatic Cancer
    almost 5 years ago
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    gemcitabine + immunotherapy (Injection of HyperAcute Pancreas immunotherapy)

    Drug or Chemo Therapy

    Terrible itching arms & legs. Hives on arms & hands.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • Toops
    • Experience with Pancreatic Cancer
    almost 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    I had problems with port NOT working properly at first. After a few weeks & having it checked it worked great.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  6. 6
    • Toops
    • Experience with Pancreatic Cancer
    almost 5 years ago
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    Tumor metastasis.

    Decision Point

    I was left with the decison of Benefit vs Burden. The Chemo would have only been for pallative & extend life an extra 4 months. I decided to have a quality of life & discontinue treatment.

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  7. 7
    • Toops
    • Experience with Pancreatic Cancer
    almost 5 years ago
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    Hospice

    Other Care

    This person has yet to add any details about this experience.

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