reed4vols' Journey with Mucinous Adenocarcinoma of the Appendix

Survivor: Rare Cancers > Appendix Cancer > Mucinous Adenocarcinoma of the Appendix

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Female, Age: 53

  1. 1
    • reed4vols
    • Experience with Mucinous Adenocarcin...
    over 4 years ago
    reed4vols' Avatar

    Surgery

    Procedure or Surgery

    I had cytoreductive surgery with heated chemo wash, commonly in our circles, called MOAS (mother of all surgeries). I had the first MOAS in December 2010, then after recurrance and 2nd MOAS in Feb 2012. The cancer is still active and a third surgery will be very dangerous so I am currently in a wait and watch mode, considering various chemo regimens that cannot cure but may possibly stall tumor growth.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • reed4vols
    • Experience with Mucinous Adenocarcin...
    over 4 years ago
    reed4vols' Avatar

    Trying to decide if I should try systemic chemo or not...

    Decision Point

    During surgery, a heated chemo wash was put directly into my abdominal cavity to try and kill any cancer that was not taken out manually. Another surgery is very dangerous so my decision is to try systemic chemo or not,...it will not cure but can stall tumor growth in some patients. I feel pretty good right now so I am weighing whether to make myself sick with chemo now or to wait. Currently, my mind set is to wait and my surgeon and oncologist agree with this tactic.

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  3. 3
    • reed4vols
    • Experience with Mucinous Adenocarcin...
    over 4 years ago
    reed4vols' Avatar

    Phase II random to determine which chemo works best in HIPEC

    Clinical Trial

    During my first surgery, I received the experimental chemo (oxaliplatin). Recurrance was visible in 6 months. During my second MOAS, I received the standard mytomycin-C. I assume that I am no longer in the study and that my results were logged as part of the research. This was done at Wake Forest Medical Center.

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