uphym's Journey with Hodgkin Disease

Patient: Hodgkin Disease

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 28, Stage II

  1. 1
    • uphym
    • Experience with Hodgkin Disease
    over 4 years ago
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    Founda lump on my neck

    Oh No

    I found a lump the size of a ping pong ball between my neck and collarbone. My mom thought it was a swollen gland, and I wound up getting a sore throat the following day. I saw my GP who gave me an anti-bitoic and told me to come back in two weeks (little did I know he thought I had stomach cancer!). Before the antibiotic was up I found another lump in the same area the size of a pea. My GP immediately sent me for a CT Scan, xray and blood work; he acted so fast because my uncle was diagnosed with Hodgkins around the same age as me however he passed away nine years ago from not taking care of his body properly post cancer.

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  2. 2
    • uphym
    • Experience with Hodgkin Disease
    over 4 years ago
    uphym's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • uphym
    • Experience with Hodgkin Disease
    over 4 years ago
    uphym's Avatar

    Surgery

    Procedure or Surgery

    Had the lump removed and tested, came back positive for Hodgkins Disease.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • uphym
    • Experience with Hodgkin Disease
    over 4 years ago
    uphym's Avatar

    Where to get treated

    Decision Point

    I ultimately decide on Memorial Sloan Kettering in NYC because I needed somewhere that would work with me. Since I already work in Manhattan and had multiple connections to getting in this was clearly the choice for me.

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  5. 5
    • uphym
    • Experience with Hodgkin Disease
    over 4 years ago
    uphym's Avatar

    A study of four months of ABVD treatment

    Clinical Trial

    I decided to participate in a clinical study that is two months of ABVD followed by a Pet Scan, pending those results I either continue with two more months of ABVD or receive radiation. It was very important for me to chose a study because I figured if I have to be sick I'd rather my sickness help out other people in the future.

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  6. 6
    • uphym
    • Experience with Hodgkin Disease
    over 4 years ago
    uphym's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo is not what I expected it to be nor is it all that terrible. I love the nurses at MSKCC, they are very personable and I have formed some bonds already! The great part is the chairs recline, the lights dim and I can pass out.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  7. 7
    • uphym
    • Experience with Hodgkin Disease
    over 4 years ago
    uphym's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I was VERY against getting a port installed. I did not want something showing on my body that would be a constant reminder that I have cancer, but my second chemo treatment beat me. They had trouble getting blood return from my veins and urged me to get the port. I settled for it, and it was installed before my third treatment. I am so happy I got the port it makes my chemo treatments go by much faster and it does less damage to my veins.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
  8. 8
    • uphym
    • Experience with Hodgkin Disease
    over 4 years ago
    uphym's Avatar

    Chemo brain

    Side Effects

    This person has yet to add any details about this experience.

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