Terri's Journey:

Patient: Skin Cancer - Melanoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 8 years ago, Female, Age: 57, Stage IV, BRAF mutation positive: Yes, c-kit positive: No

  1. 1
    • Terri
    • Experience with Skin Cancer - Melanoma
    almost 5 years ago
    Terri's Avatar

    Cancer has spread/Metastasized

    Oh No

    I was diagnosed with Stage IV and then had emergency surgery because my bowels were stopped by the tumor. It was a nightmare.

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  2. 2
    • Terri
    • Experience with Skin Cancer - Melanoma
    almost 5 years ago
    Terri's Avatar

    Simple removal surgery

    Procedure or Surgery

    Biochemo, interferon, IL-2, Yervoy, multiple surgeries. I had Til at National Institute of Health. None worked. all horrible except for the Yervoy which wasn't too bad.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Terri
    • Experience with Skin Cancer - Melanoma
    almost 5 years ago
    Terri's Avatar

    TIL

    Clinical Trial

    They were mean to me. I was almost thrown out of the National Institute of Health the same day I had surgery with total anesthesia, because there was a blizzard and they needed the bed. I said NO. I had no where to go. Literally. The institute is in Besthesda, Maryland, and I live in California. I was alone, sick and scared. The airports and hotels were closed, and you couldn't use the streets. It was a real nightmare. Sometimes you really KNOW you are nothing but a guinea pig. Beware.

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  4. 4
    • Terri
    • Experience with Skin Cancer - Melanoma
    almost 5 years ago
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    Chemotherapy and immunotherapy combined (biochemotherapy)

    Drug or Chemo Therapy

    I ended up in Kaiser Riverside ICU. I almost died from low blood pressure. There were hallucinations, and I can't even begin to tell about all the discomfort. Chemo is XXX. I would not do it again. Let God take me.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • Terri
    • Experience with Skin Cancer - Melanoma
    almost 5 years ago
    Terri's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    My white blood count was 1. Then they gave me injections and it went up to 35,000

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  6. 6
    • Terri
    • Experience with Skin Cancer - Melanoma
    almost 2 years ago
    Terri's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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