jakechaya's Journey with Hodgkin Disease

Survivor: Hodgkin Disease

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 7 years ago, Male, Age: 65, Stage IV

  1. 1
    about 5 years ago
    jakechaya's Avatar

    Hospitalization

    Other Care

    After two chemotherapy treatments, the result was total energy loss and a global infection that sent me to ICU for a week. My care was outstanding and when I returned home, I received continued excellent care from my doctor and technicians at the clinic. One aspect I found lacking was finding the right people to provide spiritual care, other than my pastor and cancer support group from church. I was looking for a care coach who focused on the spiritual aspects. This led me to create a model for spiritual care in cancer survivorship. I am now developing this resource online as a virtual care coach. I realized cancer creates an urgency to take care of issues in life we often put off. And to make the right decisions often is based on wants, desires or fears. I found the spiritual need to be great since most people find talking about personal financial and spiritual concerns to be awkward. Perhaps we can develop better ways of helping survivors and caregivers in these areas.

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  2. 2
    about 5 years ago
    jakechaya's Avatar

    Spiritual Care

    Other Care

    As I reflect on my cancer treatment experience, I am learning that God is in the details of daily life and so often I missed those details. Today I focus on living each day and being thankful for the little things of life. I am finding God has a vision of the future for me as He extended my life. I also realize my extended life isn't simply to have a comfortable retirement, but to help other rebuild their lives and have hope in their new normal. As I surround myself with Christians who have a good balance and understanding of pain and suffering, I see this as an area needing development across all diseases, but cancer survivorship and care giving is the most urgent.

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