Ydnar2xer's Journey:

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 64, Stage I, HER2 Positive: Yes, ER Positive: No, PR Positive: No

  1. 1
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    about 5 years ago
    Ydnar2xer's Avatar

    Anniversary

    Celebration

    Wow! This 4th of July was my 9th anniversary from my diagnosis of DCIS! In 2003, I'd undergone a lumpectomy, 7 weeks of driving 70 miles round trip for radiation, and 5 years of Tamoxifen. I am WOMAN! I felt alive and powerful!

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  2. 2
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Hair is falling out, per estimated "schedule"

    Oh No

    After shower, noticed my hair is falling out...I expected it, but still, had a few tears over it. Was getting used to the pink!

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  3. 3
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    ultrasound guided biopsy, surgical biopsy

    Procedure or Surgery

    After viewing the ultrasound, the radiologist recommended an ultrasound guided biopsy. When atypical cells were found, a group of docs from the HMO recommended a surgical biopsy. Wow, I thought--this is just like LAST time. All the medical pros try to reassure me, saying, "Don't worry--96% of these tests never show any cancer"...and yet...I keep falling into that blasted 4% and continue from one test to the next. I knew I was "special", but this time I want to be in the majority!

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    single scoop or double scoop ?

    Decision Point

    I had always told my friends, "If my cancer ever comes back I'm gonna have a double mastectomy and then get some little perfect boobies made out of my stomach fat and put them right under my chin--right here!" --But I never dreamed I'd get cancer again. And all of those decisions! I have trouble deciding "paper or plastic?" My doctor says there are clinical trials for trying radiation again, but I'm not up for that. My surgeon says definitely mastectomy--but do I want a single or double? There are several types of reconstruction from which to choose and also--which plastic surgeon should I use? Lots to decide, but I haven't yet done my after check from the surgical biopsy--maybe after I talk to the surgeon and get a copy of the path report, many of these decisions will be easier to make and not seem so overwhelming! Also--I think it helps to be a BC veteran!

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  5. 5
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    1/2 way through the ickiest part of chemo!

    Celebration

    November 13 marked my 1/2 way point through my TCH regimen for breast cancer.

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  6. 6
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Yesterday I had my first of 18 intensive weeks of TCH therapy for IDC breast cancer. It went very well, amazingly, actually. The chemo room I go to has recliners for each patient and a coffee/juice/tea/crackers/cookie help-yourself bar. The nurses were plentiful and pleasant. There was a quiet, peaceful atmosphere, but frequent laughter...it really was a happy, positive place! I was there from 9:45 to 4:45, but it was fine. I had no reaction to anything they gave me and realized I'd worried about a lot of things that didn't happen. Port was excellent, as well. My husband stayed by my side the entire time, but I think next week I can go it alone. I took my knitting and at one point was "sleep knitting", he said. Apparently, I was asleep, but still actually knitting the sweater I am making. Naturally, he had no camera...and of course, I ended up having to rip out all of my unconscious stitching, LOL.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  7. 7
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    almost 5 years ago
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    1/2 Way Done With Chemo!

    Celebration

    Well, I have 9 more weeks of the "icky" chemo and then a year of Herceptin! Yahoo! Cancer can STILL BITE ME! BTW--Turkey Hat for next week's chemo...maybe a photo op?

    3 Comments
  8. 8
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    almost 5 years ago
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    Breakthrough

    Celebration

    I've learned more about myself as a person because of this bout of cancer. Before I lost my hair, I decided to take the radical step of wearing a pink Mohawk--although I'm nearly 60. I went to the salon and told the unbelieving young hairdresser what I had in mind and the rest is history,or so I thought. Today my husband & I browsed at the ACS Thrift store and got to talking with the lady who worked there. I told her I was going through chemo and that I was buying the black sparkly top to wear with my green tinsel wig at my chemo closest to Christmas time. She then related a story about a woman who came into a salon while she was getting a haircut--to get HER hair cut into a pink Mohawk...she was full of praise for this "gutsy" woman who my husband & I immediately knew was ME.

    1 Comment
  9. 9
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    almost 5 years ago
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    Finished treatment

    Celebration

    Ya-hoo! Just finished my 18 weeks (6 cycles) of TCH! Maybe now I can begin to get my fingernails back? I start Herceptin every 3-weeks next week and am psyched. I wanted my life back and it looks like it will happen now!

    2 Comments
  10. 10
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    over 4 years ago
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    To Port or not to Port?

    Decision Point

    After having my first port come apart (I fell down on it) and my second port cause infection, I have decided to avoid a third port as I only have 10 more infusions of Herceptin left. The thought of avoiding another surgery is a relief!

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  11. 11
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    over 4 years ago
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    Celebration

    I am beginning to feel like the old Ydnar! I have been exercising 4x-5x per week; going to the gym, working on elliptical, treadmill, bike and lifting weights--working up a sweat--and I'm feeling GREAT! I don't know what tomorrow will bring, but today I'm living it and LOVING it! It's WONDERFUL to feel like my old self again.

    2 Comments
  12. 12
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    over 4 years ago
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    Weight Loss

    Celebration

    Since hitting my highest weight ever while on steroids & chemo, I have now lost 30 lbs! I'm exercising 5x a week and feel GREAT! Life is so good right now.

    1 Comment
  13. 13
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    over 4 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    Am working out almost daily for an hour or two and am finding the neuropathy in my feet is FINALLY lessening. YEAH!

    1 Comment
  14. 14
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    about 4 years ago
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    Celebration

    First Herceptin infusion 9/18/2012 ... last one 9/3/2013. Elvis was there to celebrate with me!

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  15. 15
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    about 4 years ago
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    Son's Wedding

    Celebration

    I was THRILLED to be able to attend son's wedding 2 days ago to a REMARKABLE woman--and I had my own HAIR! So much to be thankful for! Only wish my sis (still going through treatment) and her hubby had been able to attend...

    1 Comment
  16. 16
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    almost 4 years ago
    Ydnar2xer's Avatar

    Loss

    My loss is that the CEO of our hospital refuses to let me volunteer in costume--apparently, it is potentially too "political" to make an exception for me to visit in the chemo room with other patients while costumed, even though the reaction I've gotten from patients, nurses & doctors has been 98% positive! The other 2% I say "hi" to and move on! Bugs the )(#%)(%#*)%#* ing out of me that mr CEO "knows best" when it comes to treating chemo patients. Give me a BREAK!

    2 Comments
  17. 17
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    almost 4 years ago
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    Procedure (both)

    Celebration

    Well, the celebration is that this week is #6 since my DIEP, and I am loving my new look. Tummy tucks HAVE to be the best invention in the whole world! On the other hand, however, I face a CT scan this afternoon because my recent blood test showed elevated liver enzymes. I know it's probably nothing, but I had hoped for more time off between procedures, proddings and exams! Wish me luck!

    3 Comments
  18. 18
    • Ydnar2xer
    • Experience with Invasive (Infiltrati...
    4 months ago
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    Almost There

    Milestones

    It's been almost 5 years since my second diagnosis of breast cancer and today I had "nipples" made to my DIEP flap reconstructed "breasts". This is the second-to-last step in a very long process of getting well and going through reconstruction. The only thing left is the tattooing which will happen in about 6 months. Today I am feeling emotional---remembering all that I've gone through--first diagnosis of DCIS, lumpectomy, radiation, tamoxifen for 5 years, 9 years clean, then second breast cancer of infiltrating ductal, mastectomy, chemo, 5 blood transfusions, reconstruction by DIEP flap, infected breasts, modifications and then today. People who haven't been through this have NO IDEA how much emotion has been connected to each of these steps. I am just feeling so thankful today that my amazingly strong husband was at my side the entire time, putting up with all my ups and downs---that I managed to somehow get through our HMO an entire team of excellent doctors, nurses and other medical professionals---and finally, that I'm still alive and kicking, 14 years after they first told me I had cancer. Breasts are highly overrated! LIFE is what counts and I'm so grateful you can still count me in!

    2 Comments