sunkist1220's Journey with Papillary Carcinoma, Thyroid Cancer
- 1 Procedure or Surgery Icon Procedure or Surgery
- 2 Oh No Icon Oh No
- 3 Decision Point Icon Decision Point
- 4 Other Care Icon Other Care
- 5 Radiation Icon Radiation
- 6 Decision Point Icon Decision Point
- 7 Procedure or Surgery Icon Procedure or Surgery
- 8 Celebration Icon Celebration
- 9 Other Care Icon Other Care
Patient: Thyroid Cancer > Papillary Carcinoma
Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 10 years ago, Female, Age: 78, Stage I
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Surgery
Procedure or Surgery
This person has yet to add any details about this experience.
Diagnosed
Oh No
This person has yet to add any details about this experience.
going hypo or waiting for Thyrogen to become available
Decision Point
This person has yet to add any details about this experience.
Have been on low iodine diet for 8 weeks while I wait for Thyrogen to become available.
Other Care
This person has yet to add any details about this experience.
Internal radiation
Radiation
In isolation for 72 hours after receiving RAI treatment yesterday. So far, so good with minimal transient side effects. Worst part is being cooped up until Sunday evening, but really, it could be so much worse! I have a wonderful supportive family and friends who are truly incredible. Due to a glitch in my doctor's office I have been on this low iodine diet for 11 weeks now, so needless to say, I can't wait to have a good meal.......my wish list: fried chicke, mac and cheese and ice cream or cake for dessert!
changing physicians
Decision Point
As soon as I am done with my full body scan next week, I will change physicians. Have not seen the endo I am with since initial visit almost 3 months ago and he and his office staff seem very cold and uncaring to me. It has been a source of additional stress which I figure can't be doing me any good. I don't know how difficult it will be to find a new endo who will accept me after starting with another doc but I will do my best.
whole body scan
Procedure or Surgery
This person has yet to add any details about this experience.
whole body scan completely clean of cancer cells
Celebration
This person has yet to add any details about this experience.
Other
Other Care
I finally found a wonderful endocrinologist, who is knowledgeable, personable, and explains everything! I have to travel over an hour to get to his office, but, wow, is he worth the extra inconvenience!!!!!