Bonnie's Journey with Ductal carcinoma in situ (DCIS)

Survivor: Breast Cancer > Ductal carcinoma in situ (DCIS)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 8 years ago, Female, Age: 62, HER2 Positive: Yes

  1. 1
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Diagnosed

    Oh No

    I owe my life to my personal dr. she started the whole thing when she reminded me 3 times to get my mam. Oh no, the big explosion...When my dr. gave me the diagnosis there was an explosion in my ears that was so loud I couldn't hear or understand what was said after. I remember wanting to kick the walls on the way out-I was so mad and couldn't explain that!

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  2. 2
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Lumpectomy

    Procedure or Surgery

    When the tumor was removed they had to remove lymph nodes from under my arm. Three years later and it is still sore-that's a long time. I freeked out when they put that wire through my breast on took me another facility for the procedure. No person should see that-what were they thinking?

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    several otc vitamiins

    Drug or Chemo Therapy

    I had to have a port put in place for the treatment (Herceptin). I had 6 weeks of radiation and 6 monthss of herceptin. I was blasted with side effects, radiation burn and depression.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    External radiation

    Radiation

    My radiation burn was 7"x9" when they finally sent me to a burn specialist (who was magic). Special treatment was required for this burn and it took a long time to heal. The scar is terrible and the skin is still thin making it impossible to dress properly for a day in public.

    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Chemo brain

    Side Effects

    I did not believe "Chemo brain" but I do now!!

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  6. 6
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Confusion

    Side Effects

    This person has yet to add any details about this experience.

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  7. 7
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Eating problems (anorexia)

    Side Effects

    I just had no apatite and nothing smelled good enough to eat. Sometimes I would smell food and feel full or throw up.

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  8. 8
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Bone thinning (osteoporosis)

    Side Effects

    I am going to have an infusion for my bones, I can't take any oral meds. for it my stomach can't tollerate it. I am stalling though--waiting for news about bone fractures from these meds.

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  9. 9
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Fatigue (tiredness)

    Side Effects

    Never been this tired in my life-I am still tired. I wonder if the 5 yr. med. is making me feel like this.

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  10. 10
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
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    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Hot flashes

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Too many side effects to list. I don't have the patience for that today.

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  13. 13
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Celebration

    This person has yet to add any details about this experience.

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  14. 14
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Job

    Loss

    This was the worste of all. I lost my job because I missed too much work. I had 6 months of treatment left and no job--no insurance. Things like this will make you think you are losing your mind, it's terrifing!!

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  15. 15
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    To learn to live with what I have not what I might have. REALITY

    Decision Point

    This person has yet to add any details about this experience.

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  16. 16
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    In home care

    Other Care

    My daughter and grandson stayed with me from start to finish. There were days I would not have gone to treatment if they had not been here to see that I did. Radiation 5 days a week for 6 weeks and an hour there and an hour home. My last radiation treatment was my first herceptin treatment, both the same day.

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  17. 17
    • Bonnie
    • Experience with Ductal carcinoma in sit...
    over 4 years ago
    Bonnie's Avatar

    Nausea medicine

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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