NeeNee's Journey with Adenocarcinoma, Lung Cancer

Patient: Lung Cancer > Non-Small Cell > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 68, Stage IV, EGFR mutation positive: No

  1. 1
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    over 4 years ago
    NeeNee's Avatar

    I've just been diagnosed with cancer!

    Oh No

    On Dec. 15th I decided to go to urgent care due to pain I believed was due to diverticulitis. After an exam and blood work, I eventually had a CAT scan a few hours later. Then I was taken for a chest x-ray. Seems that the CAT scan had caught something that looked wrong with my right lung.I was asked if I had ever been exposed to asbestos, and my answer was no. I was scheduled for another CAT scan a couple weeks later. I was told that it appeared to be mesothelioma, or mestasis (which there was no evidence of.) So, my next appointment was with a pulmonologist who ordered a PET scan. Still convinced that we were looking at probable mesothelioma, because he could not see a tumor on my lung. A few weeks later I had the less invasive bronchial biopsy which was undiagnostic. Then on February 24th, 2012 after waiting for what seemed like an eternity, I had the thoracic surgery, which confirmed I did not have mesothelioma. Unfortunately, I had non-small cell adenocarcinoma. Can't figure out how to change part of my diagnosis, but I am not EGFR positive. I am Kras positive

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  2. 2
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    over 4 years ago
    NeeNee's Avatar

    Video assisted thoracic surgery

    Procedure or Surgery

    This is the surgery that was done to get the needed biopsy's. The surgeon performed the talc procedure due to malignant pleural effusion.the right lung to prevent fluid build-up.He found the tumor which hadn't appeared on the CAT scan, it was hiding in the lining on the outer part of the lung.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    over 4 years ago
    NeeNee's Avatar

    Other

    Oh No

    About a week after being discharged from the hospital after my biopsy, I had an appt. with my surgeon. I was quite hopeful that it was caught early enough, for I had no symtoms such as shortness of breath or coughing, and my left lung was free of cancer. My husband and I were shocked when he said there was nothing more he could do..My diagnosis was non-small cell adenocarcinoma stage 4, and at this point, the only option was pallitive care.

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  4. 4
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    over 4 years ago
    NeeNee's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    About thirty mins. after getting the terrible news from my surgeon, I had an appt. with an onocologist.She asked me what I was hoping for. I told her I was hoping this was all a nightmare! Stage 1V lung cancer, OMG. The next step was an MRI to determine if the cancer had spread to my brain, which it had not. I did consider a clinical trial, but did not want to participate in one with a placebo, and the other trial that was offered was only after standard chemo stopped working.So chemotherapy was the next step.Two rounds of chemo, Avastin, Taxol, and Carboplatin, followed by two rounds of chemo minus the Avastin due to abcess on colon. My experience with the infusion was positive with no adverse reactions. I did experience severe leg pain on day 3 through 6 after round one. Then went to ER because of fever. They found I had divertiulitis and sent me home with three weeks worth of antibiotics. Round two was a repeat of the leg pain and neuropathy in my feet.Then running another fever on day ten. hospiatalized for close to a week with an abcess on my colon.Sent home with a pic line and antibiotics via gemstar pump for two weeks followed by five more weeks of oral antibiotics. My oncologist blamed the Avastin for my abcess which can cause bowel perforation.I have extensive diverticulli,so it was decided that it was too risky to continue with the Avastin. Rounds 3 and 4 went alright, still had the leg pain, but pain meds helped. I did not experience any nausea, and my appetite was and is well and alive! I have had some fatique, but not too bad.My oncologist reccomended I give my body a rest, which I've done.It's been almost 2&1/2 months since my last chemo, and I'm sceduled for a CAT scan next week.So we'll see what it shows and go from there.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    over 4 years ago
    NeeNee's Avatar

    Bowel perforation

    Side Effects

    Not a fun thing to go through. I have severe diverticulosis which was exacerbated by one of the drugs I received for the first two chemo treatments. I was so dsappointed to have to discontinue Avastin, for it is a very promising drug.

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  6. 6
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    almost 4 years ago
    NeeNee's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

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  7. 7
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    almost 4 years ago
    NeeNee's Avatar

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    almost 4 years ago
    NeeNee's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

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  9. 9
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    almost 4 years ago
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    Clinical Trial

    This person has yet to add any details about this experience.

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  10. 10
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    almost 4 years ago
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    Clinical Trial

    This person has yet to add any details about this experience.

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  11. 11
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    almost 4 years ago
    NeeNee's Avatar

    The Battle study, on the sorafenib arm.

    Clinical Trial

    The first line chemo was found to have failed as of the results of a CAT scan done on Dec. 8th 2012. I then entered the clinical trial using sorafenib. My dose had to be cut in half due to side effects, but I am now tolerating it well. I have remained stable and am due for another CAT scan on June 5th.

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  12. 12
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    almost 4 years ago
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    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  13. 13
    • NeeNee
    • Experience with Adenocarcinoma, Lung Ca...
    almost 4 years ago
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    Clinical Trial

    This person has yet to add any details about this experience.

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