lovessnow's Journey with Clear-Cell Carcinoma, Endometrioid Ad...

Survivor: Endometrial (Uterine) Cancer > Carcinoma > Endometrioid Adenocarcinoma > Clear-Cell Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 8 years ago, Female, Age: 60, Stage IV

  1. 1
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Diagnosed

    Oh No

    I had been sick for a couple of day with what I thought was the flu. Finally went to the doctor. Blood tests showed an elevated white blood cell count so she sent me to the hospital for a CT scan of my abdomen thinking it was my appendix. The radiologist was the person who told me I had multiple pulmonary emboli and a malignant mass in my lower abdomen and they were admitting me immediately.

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  2. 2
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    The surgery to remove the cancer cells included a complete hysterecomy along with the removal of 12 lymph nodes, 18 inches of my colon and 3 feet of my small bowel. So all of that could heal the surgeon left a temporary colostomy. The same surgeon took down the colostomy 6 weeks after I finished chemo treatments.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Six treatments over 5 months of Adriamycin, Taxol, and Cisplatin; 14 units of blood. Used Sancuso patches with Phenergan and Ativan and was never nauseated.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Finished treatment

    Celebration

    October 22, 2009

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  5. 5
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    Had anemia with each treatment. Received Neulasta injections with each one. With the last 5 treatments was admitted to hospital overnight for blood - anywhere from 2 to 4 units each time.

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  6. 6
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Low white blood cell counts (neutropenia)

    Side Effects

    Had low white counts with the first three treatments and was essentially quarentined in my home. The only people who came in were the home health nurse and my caregiver. Even the cat had to stay out. As difficult as this was, I know it was for my benefit. I had no infections and caught no colds during this time.

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  7. 7
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    The peripheral neuropathy in my feet has been the most difficult on-going side effect with which to cope. I was hoping it would get better, but it has not. I've been on 900 mg daily of Neurontin since three months after chemo ended. At first it was as if my feet were hyper-sensitive but in the last 12 months they've just felt numb. I can sense when I step on something, but there is no sensation of pain associated with it. Occasionally my toes will ache, especially at night. Oncologist recently increased the Neurontin to 1200 mg daily to help with this.

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  8. 8
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Chemo brain

    Side Effects

    I'm three years out and still have difficulty with concentration and short-term memory.

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  9. 9
    • lovessnow
    • Experience with Clear-Cell Carcinoma...
    over 4 years ago
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    Home care

    Other Care

    Since they did a temporary colostomy at the same time as the hysterectory, a home health nurse came in three days a week for the first three months and then twice a week for the remainder of my chemo treatments. She was such a blessing to me. When my local provider didn't want me to come to her office for blood work out of fear of infection, Christy did the blood collection at my home, as well as the additional saline infusions I needed when I became dehydrated. I can't say enough good things about her care. I don't know how I would have managed without her. It helped tremendously that she was a 10 year survivor and could provide tips for dealing with issues as they came up.

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