Judiperfume's Journey:

Patient: Liver Cancer > Hepatocellular Carcinoma or Hepatocellular Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 73

  1. 1
    almost 5 years ago
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    Diagnosed

    Oh No

    I have Hepatitis C, but no cirrhosis. This is not supposed to happen if my liver damage (stage and grade of damage) is not very high. Statistics are greatly in favor of not getting it so this was a complete anomoly and devastating diagnosis. I am not a candidate for either transplant or resection so TACE and RFA were recmmended. This was done in April of 2011.

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  2. 2
    almost 5 years ago
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    Transarterial chemoembolization (TACE)

    Procedure or Surgery

    I had both TACE and RFA in April of 2011. The TACE went very well, and the results of the RFA were great also, but I received a severe burn to my diaphragm and was in severe pain for about 4 weeks. It was difficult to even breathe. Now there is intermittent pain, probably from scar tissue on both the diaphragm and the capsule of the liver where the ablation was performed. I get very scared when this pain seems to more frequent

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    almost 5 years ago
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    Remission

    Celebration

    I was just told by my doctor at the transplant clinic that I show no signs of reoccurance of the tumor, and so new tumors in the liver. He now feels that 6 month triple cat scans and blood tests are what is recommended (Oh Boy) and of course I will do that gladly. No recommendation of using Nexavar which I do not want to take.

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  4. 4
    almost 5 years ago
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    I have decided that I would do TACE and RFA if there is a reoccurance and it is needed but no Nexavar.I would consider a Phase III clinical trial in the futuee

    Decision Point

    I feel that I am 68, and I have had a pretty good run. I do not want lto take Nexavar. i don't feel that since there is no definitive cure at tnis time, and Nexavar is pallative, I will let nature take it's course.

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