coffeenomore's Journey:

Patient: Bladder Cancer > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 65, Stage IV

  1. 1
    over 4 years ago
    coffeenomore's Avatar

    Cancer has spread/Metastasized

    Oh No

    I had been experiencing recurrent UTI;s. My family Dr sent me to a Urologist. After having tests done I was diagnosed with Bladder Cancer.

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  2. 2
    over 4 years ago
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    Surgery

    Procedure or Surgery

    I had surgery for bladder removal and complete historectomty (sp) along with partial vaginal removal. This was a 6 1/2 hr surgery. I spent 4 days in ICU and 6 days in regular room. This was done 1st week in June. I am still recovering. Having a hard time resuming normal activity. My onocologist had me doing a bunch of additional tests. Bone density, bone scan and mammogram. They found a spotin my breast, Did byoposy . This came back ductile carconima. Breast cancer on top of the bladder cancer. 2 different types. That diagnosis was a kick in the teeth. Had lumpomectomy for that. Margins were clean. The surgeon felt no chemo or radiation would be need for that.Some of my chemo cocktail drug are used for breast cancer also. Haven't started radiation yet. Guess the breast issue will be up to him. Then my onocologists tells me that the type of cancer in my bladder is very rare. About 1-2 % in the whole world. It's mainly associated with colon cancer. Now that scared me bad. My father died from colon cancer and brother (past 3 years) was diagnosed with colon cancer. It was early stage. He had several surges and chemo at the same time as radiation.. He is now doing wonderful. The good news (what a relief) my colonscopy came back good. That a big relief. All I could think what will I do. Thank god that one went my way.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    In the process of having additional testing done before chemo will start. I stared my 1st round of chemo Sept 9, 2012. 3 drug combo that went for 6 hours, then a week later back for one additional drug. So roud one is complete. I had all the typical side effects. Nausea, vomiting, diarrhea, hot flashes and body aches. The aches have been the wors part. Having had time being comfortable. Went to my family for my monthy up-date. I told her all this. Previously she had given me Zolpf for my over active mind and a sleeping pill. I could barely sleep being to worried about all that was going on.This month she took me off the Zolof and switched me to Cymbalta. She said this is used as an antidepressent and for fibromalgia and althuralgia. I've taken it for 2 days now and has seemed to lessed the aches.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    over 4 years ago
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    External radiation

    Radiation

    waiting on additional test results for this to start. Not sure yet if I will do radiation and chemo together. See Dr's next week. will find out then.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    over 4 years ago
    coffeenomore's Avatar

    Fatigue (tiredness)

    Side Effects

    30 radiation treatments done. Experienced extreme fatigue, weight loss, extreme diarrhea, burning in pelvic and genital area. Radiation side effects were worse then chemo. With chemo at least I had good days.

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  6. 6
    over 4 years ago
    coffeenomore's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  7. 7
    about 4 years ago
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    Procedure or Surgery

    About 7 days out from completion of 30 radiation treatments I noticed a lump in my left groin area. Along with swelling in my left leg from my ankle to my toes. I told my ONC radiologist and was sent for CT scan of abdm and pelvic area along with a chest xray. Chest xray was clear. Biopsy showed posative for same cancer as was in my bladder. CT showed lymph nodes on both sides are affected. Dr has scheduled me for a Pet scan. Possible treatments may be surgery with removal of lymph nodes on both sides, followed by 4 rounds of chemo and radiation at same time. Really kind of worried on how this is all going to effect me. I have lost 50 lbs since my initial surgery for bladder removal in June of 2012. Anyone have any incite to or gone through anything similar?

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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