pjs62's Journey with Anal Cancer

Survivor: Anal Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Stage Recurrent

  1. 1
    • pjs62
    • Experience with Anal Cancer
    over 4 years ago
    pjs62's Avatar

    Chemotherapy and radiation combined

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • pjs62
    • Experience with Anal Cancer
    over 4 years ago
    pjs62's Avatar

    Radiation and chemotherapy together

    Radiation

    I wish my doctor had told me the side affects this would have long term. My new doctor told me what shold have been done during tratment & after. Two years later & I'm still having issues & pain.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • pjs62
    • Experience with Anal Cancer
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    I didn't even make it a year & my cancer came back!! I was totally blindsided & unprepared for this news!!

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  4. 4
    • pjs62
    • Experience with Anal Cancer
    over 4 years ago
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    Surgery through the anus to remove tumor

    Procedure or Surgery

    I went for a second opinion & now have caring doctors who did their best to get all the cancer. But still had concern for underlying bad cells.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • pjs62
    • Experience with Anal Cancer
    over 4 years ago
    pjs62's Avatar

    Whether to wait & see if cancer spreads or have APR surgery.

    Decision Point

    I want to see my grandbabies grow, have more family time, travel with my hubby....live every day doing my best to enjoy life! So I opted for the APR & now have a perm ostomy. Its major life-changing but it beats the daily worry of cancer spreading along with all the pain from previous radiation (& having to be a homebody).

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  6. 6
    • pjs62
    • Experience with Anal Cancer
    over 4 years ago
    pjs62's Avatar

    Colostomy

    Procedure or Surgery

    My doctor did the APR surgery (remove anus, rectum, & 1/2 colon). I now have a permanent ostomy. It was a very hard time in the hospital adjusting & then got an infection so 5 days turned into 8....with a home nurse waiting when I got out.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  7. 7
    • pjs62
    • Experience with Anal Cancer
    over 4 years ago
    pjs62's Avatar

    Home care

    Other Care

    I had a home nusre visit twice a week. My husband also took over my care since I needed to have my rectum packed (& changed) 2 times a day. It took about 6 weeks for this to heal & close enough to stop the packing.

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  8. 8
    • pjs62
    • Experience with Anal Cancer
    over 4 years ago
    pjs62's Avatar

    Celebration

    This person has yet to add any details about this experience.

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  9. 9
    • pjs62
    • Experience with Anal Cancer
    over 3 years ago
    pjs62's Avatar

    Remission

    Celebration

    On Feb 2nd (yes Ground Hog's Day!) was my 1 year celebration of being cancer-free!! What a year its been...had to have permanent ostomy surgery to rid the cancer so a lot of adjusting & healing. I won't say its been easy...its an ongoing learning experience. This is not how I imagined my life but I'm here to watch my grandkids grow, to travel with my hubby...doing my best on this new journey. If any of you have questions please feel free to ask. I know it helps to have others to talk to about this.

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