mamasdaughter's Journey with Pancreatic Cancer

Caregiver: Pancreatic Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 5 years ago, Female, Age: 66, Stage IV

  1. 1
    over 4 years ago
    mamasdaughter's Avatar

    Cancer has spread/Metastasized

    Oh No

    My mom was diagnosed with Stage IV pancreatic cancer in June 2011. Multiple tumors on liver, head of pancreas enlarged and lymph node in the adrenal gland enlarged.

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  2. 2
    over 4 years ago
    mamasdaughter's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started Gemzar (IV therapy) and Xeloda (pill). Treatments every Thursday for a few hours. Three weeks on, one week off.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    over 4 years ago
    mamasdaughter's Avatar

    Chemo brain

    Side Effects

    Very confused. Seemed to always know where she was, but sometimes didn't know why she was there. (example, we were in WalMart and she just looked at me and said "What are we doing here?"

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  4. 4
    over 4 years ago
    mamasdaughter's Avatar

    Mouth sores

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  5. 5
    over 4 years ago
    mamasdaughter's Avatar

    Nausea/Vomiting

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    over 4 years ago
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    Rash

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    over 4 years ago
    mamasdaughter's Avatar

    Skin changes

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    over 4 years ago
    mamasdaughter's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  9. 9
    over 4 years ago
    mamasdaughter's Avatar

    Cancer is shrinking

    Celebration

    Tumors and lymph node reduced in size for the first 10 months or so of treatment.

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  10. 10
    over 4 years ago
    mamasdaughter's Avatar

    Anniversary

    Celebration

    This person has yet to add any details about this experience.

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  11. 11
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    With pancreatic cancer there is no going away, I guess. But in June of 2012 scans showed a slight increase in size of lymph node. Decided instead of waiting 3 months for next scan they would scan again in 2 months. In August of 2012 scans showed the Gemzar/Xeloda combo was no longer working. We are going to try a new therapy.

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  12. 12
    over 4 years ago
    mamasdaughter's Avatar

    Blood clot in lungs and leg-chemo put on hold

    Oh No

    Mom was rushed to ER by ambulance after collapsing. After many tests, they diagnosed her with a HUGE blood clot in her lungs and multiple clots in her leg. She was hospitalized for 5 days, undergoing heparin treatment. She has been sent home on Lovenox injections that she will have to take for the remainder of her life. Due to her health and the clotting, chemo has been put on hold. We meet with oncologist next week for plan B...or is it C? Well, whatever it is, it's "what's next".

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  13. 13
    over 4 years ago
    mamasdaughter's Avatar

    Body part/function

    Loss

    Not necessarily a body part or function, but mom was informed that she will never drive again. A little bit of an issue for such an independent woman, but we will manage.

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  14. 14
    over 4 years ago
    mamasdaughter's Avatar

    To DNR or not to DNR

    Decision Point

    Alot of talk this week about whether we should or should not put a DNR in place. Mom collapsing from blood clots in her leg and lungs caused quite a stir. Still thinking about this... :/

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  15. 15
    over 4 years ago
    mamasdaughter's Avatar

    Cancer has spread/Metastasized

    Oh No

    Cancer has metastasized to the bones. Having alot of pain that even morphine isn't helping relieve. Switched over to liquid oxy (oxy-fast) and that seems to be doing a better job.

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  16. 16
    over 4 years ago
    mamasdaughter's Avatar

    Hospice

    Other Care

    We brought Hospice on board a couple weeks ago and it was the best decision ever made. It has been such a relief. And the nurses and aides love Mama and her sassiness. She is giving them a run for their money!

    1 Comment
  17. 17
    over 4 years ago
    mamasdaughter's Avatar

    Body part/function

    Loss

    Mama is, for the most part, bedridden. Catheter has been put in place. Too many falls and too much of a fall risk to continue letting her out of bed too often. She feels she has lost her independence and her dignity. It's been an emotional experience for all of us on one level or another.

    1 Comment
  18. 18
    over 4 years ago
    mamasdaughter's Avatar

    Lost loved one

    Loss

    Mama passed away on November 4 around 9:30 p.m. It was very peaceful and just not as horrible as we were all expecting. Still sad, but comforting to know that even in her death she was still taking care of us. She was an amazing woman and I stand in awe of her, always have, but now just even more.

    2 Comments