DianaL's Journey:

Patient: Breast Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 70, Stage II, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • DianaL
    • Experience with Breast Cancer
    about 5 years ago
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    Diagnosed

    Oh No

    Diagnosed on 4/3/2012 with Invasive Lobular Carcinoma.

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  2. 2
    • DianaL
    • Experience with Breast Cancer
    about 5 years ago
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    Lumpectomy

    Procedure or Surgery

    I had a lumpectomy on 5/17/2012. Surgical path came back good. Final path report came back with 2 of the 3 sentinel nodes with cancer and a second cancer was found next to the original tumor--Ductal In SiteSu. So breast conversation with brachytherapy was gone and mastectomy was recommended. Decided to have both breasts removed in order to have peace of mind.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • DianaL
    • Experience with Breast Cancer
    about 5 years ago
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    Mastectomy

    Procedure or Surgery

    On June 14, 2012 I had a bilateral mastectomy. Path report came back with no cancer in any other nodes, blood vessels or nerves. No radiation needed and possibly no chemo. One of the happiest days of my life. All the cancer had been removed at the time of the lumpectomy. Will have reconstruction once we know about chemo. If no chemo now. If chemo then I will have to wait at least 12 or more weeks from start of chemo. I am having implants on the recommendation of my surgical oncologist.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • DianaL
    • Experience with Breast Cancer
    about 5 years ago
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    Hormone therapy

    Drug or Chemo Therapy

    My oncologist is not sure he will need to do chemo on me. I am over three months out from diagnosis and since there was no other cancer found and path report was so good I have been started on Arimidex. This is a hormone blocker. I have been on it since 8/13/12 so I do not know what the side effects will be for me. Healing of the mastectomy has been slow so that is another reason he is not sure about the chemo.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    • DianaL
    • Experience with Breast Cancer
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Well, I started chemo on September 6th. It went really well! No nausea, no fatigue, or no more than I already have! My chemo is Taxotere and Ctyoxan. I will have treatments every three weeks for four treatments. 25% there. I also received the Neulasta shot the day following chemo. Did not get started on the Claritin a day before the shot so pain started about the middle of the second day. My legs, and knees hurt the most but it is tolerable. Will try taking the Claritin the day of chemo to see if it does really help more than this time!

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  6. 6
    • DianaL
    • Experience with Breast Cancer
    almost 5 years ago
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    Fatigue (tiredness)

    Side Effects

    I had my first chemo of Taxotere and Cytoxin on 9/6. I was surprised that I had no noticeable side effects. I got the Neulasta shot on 9/7 and that is another thing altogether. I started hurting, bones, muscles--especially my legs--on 9/8. I took the Claritin but later found out that I should have taken it the day before the shot. The side effects were gone by the next Friday. I have felt great but do tire out when I try to do too much. Lost my hair on day 15 and had it buzzed on day 16, My beautician was great and left me with about 1/16 of hair so I don't feel quite so bad. She also showed me how to style my wigs. So all in all my first experience with chemo was not bad. My next one is this Thursday, so we will see how that goes.

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  7. 7
    • DianaL
    • Experience with Breast Cancer
    almost 5 years ago
    DianaL's Avatar

    hair

    Loss

    Lost my hair on day 15, started coming out in clumps when I ran my fingers through it. I was told to expect it around the two week mark. Went on day 16 and had it buzzed with about 1/16" of hair left on my head. My beautifician took the time to show me how to style my really good wigs and trimed and helped me with two inexpensive wigs. I just got a compliment from someone here at work -- she just loved my hair. So for me it is not a terrible thing, would I rather have hair, yes, but it will grow back after chemo is over.

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  8. 8
    • DianaL
    • Experience with Breast Cancer
    over 4 years ago
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    Breast reconstruction after chemo

    Other Care

    Well, I have officially finished with chemo on November 8, 2012. Will be glad to feel better (get very fatigued), and to start seeing my hair to start coming back! I met with my plastic surgeon and he plans for reconstruction on February 15, 2012! It will depend on my next visit to the oncologist to see if all my blood counts have come back up-- very anemic. I will finally have these baseballse removed from under my arms, expanders put in, Alloderm used on each side to form the pocket to hold the expanders and eventually the implants. He says my skin is too thin. Once he puts the expanders behind the muscle he will take tissue from my back to make them look more real. Supposedly I will be very sore but able to return to work in a week! Then we have three months or longer to fill them. I guess with cancer nothing goes fast, but at least steady. By the time I finials with this phase it will have been over a year from my first surgery. Life is good--I am here to tell about this and have had a wonderful medical team, support from my family, friends and the best co-worker family ever! I have been blessed on this journey to meet some wonderful people along the way that have been so encouraging!

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  9. 9
    • DianaL
    • Experience with Breast Cancer
    about 4 years ago
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    Decision Point

    This person has yet to add any details about this experience.

    1 Comment
  10. 10
    • DianaL
    • Experience with Breast Cancer
    almost 3 years ago
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    Celebration

    This person has yet to add any details about this experience.

    2 Comments