PanCanPatti's Journey with Pancreatic Cancer

Patient: Pancreatic Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 5 years ago, Female, Age: 66, Stage IV

  1. 1
    over 4 years ago
    PanCanPatti's Avatar

    Diagnosed

    Oh No

    Had not had any symptoms prior to the week before my trip to ER writhing in pain. Doctor thought I had an aneurysm, if only! I felt so exhausted when she came in to tell me. Starting with, "I never thought I'd had to tell you this." I responded with, " Well, don't." Then I was transported to the big hospital (we live in small community) and thought the pain would kill me before the day was out (no exaggeration). It took a week to finally believe I would probaby not die immediately (but definitely within the 3-6 months I heard somebody say I had). So going home after what seemed like ages felt surprising more than any thing else.

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  2. 2
    over 4 years ago
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    Health insurance issue

    Oh No

    I have Coventry and God Bless Them they have paid for all my treatment except for some co-pays. And thats been 14 months now. I am not sure it's been all Coventry on it's own or the co-ordinator at the treatment center knowing what to say,how to say it and how to get it done. But thank God somebody has made it all possible. Now that the initial treatment has stopped working they have to start all over again. Will find out this week where we are with that process.

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  3. 3
    over 4 years ago
    PanCanPatti's Avatar

    Misdiagnosed

    Oh No

    Please God let that be the answer!

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  4. 4
    over 4 years ago
    PanCanPatti's Avatar

    Money

    Oh No

    My short term disability is 60% of my pay so that is one big chunk out of pay day. So that is devistating for the budget. The people at my work and it is a big facility had fund raisers for me and were so needed and so appreciated and the amounts were so unbelievable. I know everyone doesn't have that luxury, but may some other way to halp out. I also had people providing meals a couple times a week to save money. I it certainly boost the morale when you see how much people really do care and really do want to help.

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  5. 5
    over 4 years ago
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    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    over 4 years ago
    PanCanPatti's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    2 Comments
  7. 7
    over 4 years ago
    PanCanPatti's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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  8. 8
    over 4 years ago
    PanCanPatti's Avatar

    Nausea medicine

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  9. 9
    over 4 years ago
    PanCanPatti's Avatar

    Pain medicine

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  10. 10
    over 4 years ago
    PanCanPatti's Avatar

    Blood sugar, high (diabetes)

    Side Effects

    hard to keep blood sugar low because pancrease gets irritated . Have to increase insulin units to keep up with it.Doctor says I was a Type II and now I'm heading to a Type I,probably a Type 1 1/2 now LOL!

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  11. 11
    over 4 years ago
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    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    over 4 years ago
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    My mind/Sense of Humor

    Loss

    I have got my sense of humor and refuse to let anybody bring their "woe is me" attitude to me. I'm going to get bad side effects...but not today. I'm going to have to miss a lot of work...but not today. I'm not going to be able to drive...but not today. I'm ready to talk about this with any one who cares. Some are shocked,they thought I was already over the chemo and getting better. Think I look great...and I do.

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  13. 13
    over 4 years ago
    PanCanPatti's Avatar

    to go to the next group of chemo meds and start all over

    Decision Point

    After the world blew apart finding out the chemo that had sustained me for 14 months had let me down, Ihad to decide whether I was game to start the next group 5FU...most appropriate name. 45 minutes later I had my head exploding all over again with all the information I was being given. Did I want to go with it or not...yes. But I am so afraid of this chemo therapy...mostily the unknown. After calming down I realized they had given my every single side effect out there, but it didn't mean I had to have every single one. I breezed thru the gemsidabine and xeloda. So each day gets a bit better and I'm sure until I've been through the first couple treatments Then we'll decide if I stick with it or not.

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  14. 14
    over 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  15. 15
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    Was on gemsidabine/Xeloda and did great for 12 months. Then a little increase here and a shadow there. Now at 14 months it's all starting to increase in size, new spots have sprouted up. WOW! Blow my world a part all at once. Working on it day by day. Hey, this could work 14 months too.

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