littleglow's Journey with Rare Cancers

Caregiver: Rare Cancers

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 4 years ago, Female, Age: 5

  1. 1
    about 4 years ago
    littleglow's Avatar


    Oh No

    Unexplained vomiting and failure to thrive led up to a head MRI which found a small mass in my daughter's 4th ventricle of the brain. Looks like it's partially in the brain stem. No hydrocephalus, so we wait for one more MRI to rule out any spread throughout the spine, then we'll plan a surgery to get out most. And then? Chemo? She's not quite 1 1/2, so they don't want to do radiation on her brain yet. Ick.