Gcuervo65's Journey with Slow Growing, Chronic Lymphocytic Leu...

Patient: Leukemia > Chronic Lymphocytic Leukemia (CLL) > Slow Growing

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 10 years ago, Male, Age: 54

  1. 1
    • Gcuervo65
    • Experience with Slow Growing, Chroni...
    about 8 years ago
    Gcuervo65's Avatar

    Initial diagnosis

    Oh No

    It was very difficult accepting the diagnosis. I went for a routine checkup because I was always tired and then I find out I have Leukemia. I was angry and scared. Then I'm told there is nothing g that can be done at the moment except monitor it. "Wait and watch". Not what one wants to hear. I guess I am fortunate that it is not as advanced as it could have been.

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  2. 2
    • Gcuervo65
    • Experience with Slow Growing, Chroni...
    about 4 years ago
    Gcuervo65's Avatar

    bone marrow biopsy

    Procedure or Surgery

    Went better than expected.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Gcuervo65
    • Experience with Slow Growing, Chroni...
    about 4 years ago
    Gcuervo65's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was on Rituxin combination therapy from May 2016 until December 2016. This was a very difficult time and thanks to the support of my family and friends as well as my loyal dog Tula, that was with me through this until she passed in February 2017 from cancer. This was devastating for me. However, I could not bare to see her suffer through it any longer so I had to make the very difficult decision to euthanize her. I was in remission from December 2016 until September 2017 when it became recurrent, slow growing CLL. I am currently on Chlorambucil and the tiredness, which I should be used to by now, and the joint pain and nausea are somewhat under control. I must say that Cannabis helps with these side affects. It helps with the nausea and helps me to relax as well as helps with some of the joint pain. I must admit that the news that I was out of remission so soon was very shocking to me. I knew it would not last forever but I did expect more time. I’ve had to deal with anxiety since my diagnosis and it has only gotten worse. I do my best to keep busy and take my anti anxiety medication but I think that it’s also time to get another service dog to help me through this.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • Gcuervo65
    • Experience with Slow Growing, Chroni...
    about 4 years ago
    Gcuervo65's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    On Gleevec. Side affects are pretty harsh. Joint and muscle pains are affecting me the most. Nausea is more controlled with medications.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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