mobrien14's Journey with Renal Cell Carcinoma

Spouse/Partner: Kidney Cancer > Renal Cell Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 6 years ago, Female, Age: 42, Stage I

  1. 1
    • mobrien14
    • Experience with Renal Cell Carcinoma
    about 5 years ago
    mobrien14's Avatar

    Pain

    Side Effects

    To whom can help or talk, My fiancee (36) had a partial nephrectomy (2.8cm stage 1 grade 4 cancerous tumor) removed from her right kidney in Nov 2011 and is still experiencing these symptoms: Shooting pain through right side of body (were it was performed), causes extreme achyness, right eye twitches and vision in right eye has went from 2.50 to 3.00, right ear gets muffled or ringing, "feels like right side has been used as punching bag", right ring finger and pinkie goes numb most of the day, causes severe pain in neck and right jaw and throughout right side of her head, neck skin is sore to touch. These are the symptoms. She's had CT scans, MRI, blood drawn, been to Pain specialists (2), been to ER 15-20 times, doctor's visits over 25 times, and 2 neurologists who both have included the nerves are firing. Injections to illeogastric nerve. She performed 2 painful sessions of physical therapy. We are stuck. Her current medications or former medications are Hydrocodone (vicodin), Baclofen, Lyrica (trying it now), vallium, ibuprofen, lorazapam, Zanaflex, Tegratol, Cimbalta, Praxil, Neurotin, Percocet (No tylenol), Lydocain patches and injections. We are stuck and don't know if anyone has any suggestions, solutions or other avenues to pursue. We are on here because all these procedures, medications, doctor visits having produced no relief. We are both desperate and with her out of work (Denied health disability benefits from Mutual of Omaha, after several appeals, with over 150 pages of Dr's notes and charts) times of financial stability have come and gone. We are praying to find the life we once had, but no longer can vision. If anyone can help....please reply or email back. Sincerely, MOB

    1 Comment
  2. 2
    • mobrien14
    • Experience with Renal Cell Carcinoma
    about 5 years ago
    mobrien14's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • mobrien14
    • Experience with Renal Cell Carcinoma
    about 5 years ago
    mobrien14's Avatar

    Money

    Oh No

    Dear , My fiancee (36) had a partial nephrectomy (2.8cm stage 1 grade 4 cancerous tumor) removed from her right kidney in Nov 2011 and is still experiencing these symptoms: Shooting pain through right side of body (were it was performed), causes extreme achyness, right eye twitches and vision in right eye has went from 2.50 to 3.00, right ear gets muffled or ringing, "feels like right side has been used as punching bag", right ring finger and pinkie goes numb most of the day, causes severe pain in neck and right jaw and throughout right side of her head, neck skin is sore to touch. These are the symptoms. She's had CT scans, MRI, blood drawn, been to Pain specialists (2), been to ER 15-20 times, doctor's visits over 25 times, and 2 neurologists who both have included the nerves are firing. Injections to illeogastric nerve. She performed 2 painful sessions of physical therapy. We are stuck. Her current medications or former medications are Hydrocodone (vicodin), Baclofen, Lyrica (trying it now), vallium, ibuprofen, lorazapam, Zanaflex, Tegratol, Cimbalta, Praxil, Neurotin, Percocet (No tylenol), Lydocain patches and injections. We are stuck and don't know if anyone has any suggestions, solutions or other avenues to pursue. We are on here because all these procedures, medications, doctor visits having produced no relief. We are both desperate and with her out of work (Denied health disability benefits from Mutual of Omaha, after several appeals, with over 150 pages of Dr's notes and charts) times of financial stability have come and gone. We are praying to find the life we once had, but no longer can vision. If anyone can help....please reply or email back. Sincerely, MOB

    0 Comments