CathysSis' Journey with Endometrial (Uterine) Cancer

Family/Friend: Endometrial (Uterine) Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 9 years ago, Female, Age: 54, Stage IV

  1. 1
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Diagnosed with Stage IV Uterine Cancer

    Oh No

    After 2 months of off/on heavy bleeding, admitted to er with severe pain in abdomen. Was given a hysterectomy, appendix removal and 2 tumors in abdomen. Told she has Stage 4 Uterine cancer.

    0 Comments
  2. 2
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Surgery

    Procedure or Surgery

    hysterectomy, appendix removal and 2 tumors in abdomen. Told she has Stage 4 Uterine cancer.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    most intensive chemo possible in hospital for 1 week per month for 6 months. with many blood transfusions.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    neuropathy in hands and feet, vomiting, extreme weight loss, hair loss, vision problems, low blood cell counts countered by transfusions.

    0 Comments
  5. 5
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Port infected

    Oh No

    Port becomes infected, friend breaks into sister's home 2 days later to find her unconscious and 2 hrs from dying of sepsis according to hospital.

    0 Comments
  6. 6
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Remission

    Celebration

    After most intensive chemo possible, sis is in remission for 9 months! :o)

    0 Comments
  7. 7
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Cancer is back/Recurred

    Oh No

    another tumor found, rapid growth, is told by dr she has to wait 1 month before chemo.

    0 Comments
  8. 8
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    told her heart can't handle much more chemo and is put on 3 Friday's on chemo, 1 Friday off. Told she has 3 months to live if chemo doesn't work.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  9. 9
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    tumor contents have liquified

    Celebration

    only one chemo treatment left (Friday Oct 14th)

    0 Comments
  10. 10
    • CathysSis
    • Experience with Endometrial (Uterine...
    about 6 years ago
    CathysSis' Avatar

    Looking into Alternate Therapies

    Decision Point

    Dr's say no more chemo. I started a donation website to help my sister with fee's outside her insurance. http://www.gofundme.com/cathymerryman The $4,000 goal was for airfare, food, child care (for her daughter) to stay with us for a month to care for her and help her learn better nutrition as well as alternative therapy. Now that we have researched alternative therapies, Gerson, SD Cancer Center, Reno facility, the $ goal was a HUGE underestimate. Sis is still coming to stay but now we don't know what to do.

    0 Comments
  11. 11
    • CathysSis
    • Experience with Endometrial (Uterine...
    almost 6 years ago
    CathysSis' Avatar

    She stopped Chemo before her last month of it

    Decision Point

    Sis told Doctor no more chemo and taking a vacation break. Dr NOT happy. Sis feels like chemo is killing her more then the cancer is. Will be staying with us for all of November and getting emotional as well as mental and physical support from family and naturopathic therapists. Looking forward to a healthy Thanksgiving. 3 weeks chemo free!

    1 Comment
  12. 12
    • CathysSis
    • Experience with Endometrial (Uterine...
    over 4 years ago
    CathysSis' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Very sick, could barely eat, lost 60 lbs in 3 months. She also had the pockets (3) around her tumor drained 3 times. This ended up being her last chemo treatments

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  13. 13
    • CathysSis
    • Experience with Endometrial (Uterine...
    over 4 years ago
    CathysSis' Avatar

    Moved in with us

    Decision Point

    She realised she couldn't raise her daughter and do chemo too. They moved in with us.

    0 Comments
  14. 14
    • CathysSis
    • Experience with Endometrial (Uterine...
    over 4 years ago
    CathysSis' Avatar

    No more chemo, Start Hospice care from home

    Decision Point

    This was hard for Cathy to do, she was very afraid of hospice. She just couldn't face anymore chemo. Hospice went into action later that day, eventually they made Cathy more comfortable with a hospital bed, a wheelchair, various types of mattresses for comfort. All the right meds and instructions for us on how to give them for MUCH better pain control.

    0 Comments
  15. 15
    • CathysSis
    • Experience with Endometrial (Uterine...
    over 4 years ago
    CathysSis' Avatar

    Lost loved one

    Loss

    Cathy lost her fight with cancer August 24th 2012. She and her daughter had been with us for 3 months. My husband and I held her hand as 3 Elizabeth hospice staff and a wonderful volunteer, Annie, watched over her. Annie sat with her the day before, while we worked (from home) and Cathy's daughter started her 1st day of 11 grade at her new school. I had been laying bandanas wetted in ice baths over Cathys, head, arms, legs and neck for about 5 days. She had stopped talking or communicating 3 days ago. Annie told me my niece and I should say our goodbyes that night so Cathy could move on. I explained to my niece and she was very strong for a 16 year old (She had been looking after her mom for 3 years on her own). We both told Cathy how much we loved her and would miss her, but wanted her to relax and let go. Cathy died the next day while her daughter was at school. We already had a support team in place at my niece's school (school counselor notified all her teachers about her mom's status and that she may have to leave suddenly). The Hospice grief counselor also happened to be with us. I would just like for people reading this to know that Cathy was very angry with family members who she felt did not step up to help in various ways. The last month she was with us, she was practically mute. I asked my niece why and she said, 'My mom said if she can't say anything nice, she wasn't going to say anything at all.' I hope anyone in their final stages can try to understand that everyone does what they can, everyone deals with loss differently, some pull away because they're afraid, I did with my maternal grandmother's death. I wish we had left Cathy home alone with a grief counselor, instead of abiding by her wishes. But like I said everyone deals with death differently. I hope anyone reading this who is angry at a loved one, tries to put it aside. I am just so glad I had my husband to help me through this and to be there for Cathy too, especially since she never had a man in her life worth calling a man. Cathy was a wise woman in many ways, one decision she made was to move in with us when we offered, which was during last summer, so our niece could go to band camp (the 'biggest gang on campus') and make friends before starting at a school new to her. We have Cathy's ashes in her daughter room. We fought for (dad's in jail) and became my niece's legal guardians last month. I can say we miss her mom, my sis, deeply, but Cassandra is seeing a grief counselor for free for a year thanks to the hospice and she has a sweet boyfriend and loads of friends at school who are a joy in her life. I hope, if Cathy can see how her daughter is being care for, she is happy and content.

    0 Comments
  16. 16
    • CathysSis
    • Experience with Endometrial (Uterine...
    over 4 years ago
    CathysSis' Avatar

    Hospice

    Other Care

    Once Cathy resigned herself to the fact it was her only option if she stopped chemo, and Elizabeth Hospice came, we all realised how wonderful they are. They helped us keep Cathy free from pain, and counseled all of us, except Cathy (her wishes).

    0 Comments