laforty12's Journey:

Spouse/Partner: Brain and Spinal Cord Tumors in Adults

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Male, Age: 43

  1. 1
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Diagnosed

    Oh No

    first diagonsed after a trip to er with headaches and felt like some presssure for over a week!

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  2. 2
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Biopsy

    Procedure or Surgery

    had surgery to determined excatly what we were dealing with- a biopsy was preformed!

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    results came back now had to decide what to do

    Decision Point

    results came back dec 20th with stage 1 and 2 cells asterctomia with just a small peice for the biopsy!

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  4. 4
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    did surgery to remove all the tumor to see excatly what we were dealing with to they knew how to treat it!!

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    got results back

    Decision Point

    got results back had to make decisions on next step! do conventional treatment or go right to clinical trials! the results were 20 % stage 4 gbm and had some stage 3 and of course the stage 1 and 2 cells!!

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  6. 6
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    suppose to have 6 weeks of chemo but ended up with only 4 weeks due to plateltte levels dropped massively

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  7. 7
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Low platelet counts (thrombocytopenia)

    Side Effects

    This person has yet to add any details about this experience.

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  8. 8
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Allergic reaction

    Side Effects

    broke out in hives and the sterods helped some with it

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  9. 9
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Internal radiation

    Radiation

    had radiation done 5 days a week for 7 weeks!!

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  10. 10
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    found another small spot after the 4 week break and our first mri after the radiation/chemo combo!!

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  11. 11
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    continuned with the next pahse of treatments -5 days a month for 3 months of the 2 year plan started

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  12. 12
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
    laforty12's Avatar

    Allergic reaction

    Side Effects

    another reaction broke out in major hives head to toe , nothing is helping with it

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  13. 13
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
    laforty12's Avatar

    Surgery

    Procedure or Surgery

    had to remove another tumor /spot but the drs figured it defainlty was but want to remove it and find out for sure!!

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  14. 14
    • laforty12
    • Experience with Brain and Spinal Cor...
    over 4 years ago
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    waiting on results for next step

    Decision Point

    got the results back on tumor same stage 4 as last one was!! now waiting on testing for clinical trials cause the chemo isnt working!

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